← Return to High Ferritin Levels: How can I lower my levels?

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Profile picture for islandgreen @islandgreen

I have to go to a hemototlogist for high ferratin. I have blood work done every four months. I do hav hemochromatosis.

No medication but a strict diet is necessary to keep the ferratin low. NO red meat for sure and many other things like no leafy green vegetables. If the ferratin level becomes to high they have to do a phlemobotomy and I hate that because in my case it hurts. So I sticr rigidly to the diet. You really should go to a hemotologist and get the diet.

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@islandgreen I do not have Hemochromatosis, but I am in remission for bone marrow cancer. Over the years, I have had chemotherapy and blood transfusions. My ferritin level is now at 800 after dropping from 1200. I have had phlebotomy treatments to get it to 800 and more are scheduled. Because of my bone marrow cancer, we have to keep a close eye on my hemoglobin levels. Every time I have phlebotomy, my hemoglobin drops. My question for anyone who may know, what is an acceptable amount of dietary iron intake on a daily basis. I am losing weight because I am trying to avoid food with iron. My oncologist told me not to eat red meat, shellfish or liver, no iron or Vitamin C supplements, but almost everything has iron in it. Does anyone know of a recommended daily allowance of iron for patients with high ferritins undergoing phlebotomy? Have you ever heard of a specific diet or recipe book? I was also told to drink black tea because it helps block iron absorption. Thanks to anyone with any ideas.