Hello @mpt and welcome to the NETs support group on Mayo Connect. You don't say how long ago you were diagnosed with the PNET, however, it appears as if this might be a recent diagnosis. Is my understanding correct?
I'm sure you are looking forward to your upcoming CT scan to see if the CAPTEM has resulted in any shrinkage of the Pnet. Do you have a date for the CT scan yet?
While we wait to see if anyone else has had the laparoscopic surgery that has been suggested to you, I am wondering if you have sought a second opinion regarding this type of surgery. It is a patient's right to seek second opinions regarding any surgery and in this situation, where the surgeon is already expressing doubts about the surgery's effectiveness, this represents strong reason to get a second opinion.
Here is some information about seeking a second opinion: https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/tips-for-seeking-a-second-opinion/. As NETs are a rather rare type of cancer, I would recommend that you see a NET specialist. NET specialists are specially trained to diagnose and treat NETs in the most effective way possible.
Mayo Clinic has NET specialists at all three of its locations. If you would like a second opinion at a Mayo facility, here is a link with appointment information. http://mayocl.in/1mtmR63. If you cannot be seen at Mayo for any reason, here is a link to NET specialists throughout the U.S. https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.
Have you considered getting a second opinion, @mpt?
Diagnosed 1/31/25. Cat scan is on 6/11/25. Laparoscopic surgery has not been suggested, only open surgery which is why I have reached out on here. I found a Dr. Ephraim Tang in Ontario Canada that did the laparoscopic on a patient of similar diagnosis. I am waiting for a call from him. I have an upcoming appointment with another surgeon here in New York. And I have two others in New York as well. I was just reaching out on this forum to see if anyone else has had a similar diagnosis and had laparoscopic surgery.
I did call the Mayo Clinic in Rochester but they told me I would have to redo my PET scan and other tests at their facility. I was told the PET scan is typically done once. I don't feel the need for redoing all the scans in Rochester. I have all my reports and CDs available for them.