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DiscussionDoes anyone else have neuropathy?
MAC & Bronchiectasis | Last Active: Jun 9 8:50am | Replies (36)Comment receiving replies
Replies to "I experienced tingling in my toes day 1 on ethambutol. It progressed to painful feet where..."
Ethambutol: As for myself, my doctors don't know whether the numbness in my hands and feet is coming from Ethambutol (400 mg three times a week) or from the EGPA that I was diagnosed with in January. It was then that I had no choice but to go on The big 3 for my MAI that I was holding off on. May I ask what dose you are on?
I experienced neuropathy after about four months on the ethambutol and even then the doctors refused to say it was the ethambutol. I did come off the med and the neuropathy improved but my symptoms weren’t as pronounced as yours. It’s a good sign that it’s gotten a little better and hopefully it will keep getting better. All the best wishes to you.