1. < Bladder Conditions
Profile picture for hdwoman

Interstim for urinary retention

Posted by hdwoman @hdwoman, Jun 4 1:06pm

I'm in a minority of women who has developed urinary retention. Everything known to man has been tried, except one. The Interstim procedure. I'm scheduled for 6/24. In the meantime, I have to be cathed weekly, but it always leads to a UTI which leads to retention. Vicious circle. I desperately need help and pray someone who's reading this can help.

Interested in more discussions like this? Go to the Bladder Conditions Support Group.

Profile picture for dlydailyhope
dlydailyhope | @dlydailyhope | Jun 5 8:52am

@hdwoman
Do they know the cause of your urinary retention and how long have you had this?

There are neurological causes of urinary retention. What tests and imaging have they done (ultrasound, MRI, CT scan, etc.)? Have you seen a neurologist?

What are all of your current symptoms beyond urinary retention? You may want to have your brain and cervical spine checked with MRI to see if there is anything affecting your central nervous system and communication to your bladder. I have cervical spine compression/myelopathy and it can cause urinary retention or control issues plus many other symptoms below your neck.

1. https://my.clevelandclinic.org/health/diseases/15427-urinary-retention
2. https://www.healthline.com/health/urinary-retention
3. https://www.bladderandbowel.org/bladder/bladder-conditions-and-symptoms/urinary-retention/
4. https://health.clevelandclinic.org/why-is-it-hard-for-some-women-to-empty-their-bladders
5. https://pmc.ncbi.nlm.nih.gov/articles/PMC4271374/
6. https://www.bladderandbowel.org/bladder/bladder-conditions-and-symptoms/urinary-retention/

REPLY
1 reply
Profile picture for hdwoman
hdwoman | @hdwoman | Jun 5 1:34pm
In reply to @dlydailyhope "@hdwoman Do they know the cause of your urinary retention and how long have you had..." + (show)
Profile picture for dlydailyhope @dlydailyhope

@hdwoman
Do they know the cause of your urinary retention and how long have you had this?

There are neurological causes of urinary retention. What tests and imaging have they done (ultrasound, MRI, CT scan, etc.)? Have you seen a neurologist?

What are all of your current symptoms beyond urinary retention? You may want to have your brain and cervical spine checked with MRI to see if there is anything affecting your central nervous system and communication to your bladder. I have cervical spine compression/myelopathy and it can cause urinary retention or control issues plus many other symptoms below your neck.

1. https://my.clevelandclinic.org/health/diseases/15427-urinary-retention
2. https://www.healthline.com/health/urinary-retention
3. https://www.bladderandbowel.org/bladder/bladder-conditions-and-symptoms/urinary-retention/
4. https://health.clevelandclinic.org/why-is-it-hard-for-some-women-to-empty-their-bladders
5. https://pmc.ncbi.nlm.nih.gov/articles/PMC4271374/
6. https://www.bladderandbowel.org/bladder/bladder-conditions-and-symptoms/urinary-retention/

Jump to this post

Thank you so much for your reply!

To add to your list, I've had a cystectomy done too. Showed nothing.

I thought I did my due diligence, but you've given me a plethora of info I need to check out.

Thank you again!

REPLY
Profile picture for beachgirl13
beachgirl13 | @beachgirl13 | Jul 10 4:31am

How did the surgery go? Was it affective i am considering but cannot find anyone else with retention who has gotten the implant.

REPLY
Profile picture for hdwoman
hdwoman | @hdwoman | Jul 10 8:52pm

Thanks and it's really too soon to tell. But for me, there has been a 50% improvement as of now. I'll take it! Statistics show that it's about 85% effective on average. Along with the links posted above by dlydailyhope, check out Medtronic that makes it and search Interstim online for more info. I go back in 2 weeks for a check up.

REPLY
Profile picture for rainyday541
rainyday541 | @rainyday541 | Sep 27 9:01am

I just had the InterStim procedure this week. My Phase 1 trial went well with a 50% decrease in trips to the bathroom. So I’m encouraged and hoping for good results. I have overactive bladder and was in the bathroom 22-24 times daily before InterStim.

REPLY
1 reply
Profile picture for cdhmri5
cdhmri5 | @cdhmri5 | 6 days ago
In reply to @rainyday541 "I just had the InterStim procedure this week. My Phase 1 trial went well with a..." + (show)
Profile picture for rainyday541 @rainyday541

I just had the InterStim procedure this week. My Phase 1 trial went well with a 50% decrease in trips to the bathroom. So I’m encouraged and hoping for good results. I have overactive bladder and was in the bathroom 22-24 times daily before InterStim.

Jump to this post

@rainyday541 I just had the Interstim surgery as well, last Monday! Hope you're doing well!

REPLY
Profile picture for rainyday541
rainyday541 | @rainyday541 | 19 hours ago

I am doing very well. Having this procedure has given me freedom to go and do things I like without worrying about finding a bathroom in time or an accident. Thank you! How are you doing?

REPLY
Please sign in or register to post a reply.