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PNET in Tail of Pancreas, Portal and Splenic Veins
Neuroendocrine Tumors (NETs) | Last Active: Jun 9 2:24pm | Replies (23)Comment receiving replies
FWIW my wife, with a grade 2 stage 4 PNET with a large tumor on her pancreas that involves her SMV and other veins was clearly advised against surgery by two hepatobiliary surgeons with the dual rationale that surgery to remove the tumor from the veins was very high risk and, given the metastases to the liver, unlikely to change the course of her illness. The good news is that her 9 courses of CAPTEM reduced the size of both the primary tumor and, more importantly, her liver lesions. Dr. John Weiss at Northwell provided the second opinion regarding surgery.
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Hi,
Thank you for you reply. I have a grade 2 very slow growing. But my liver is clear and that is why I may be a candid for surgery. It only is in the tail of pancreas and the portal and splenic veins. Not in SMV. I guess that is the difference between your wife's condition and myself.
I heard of Dr. John Weiss. There is Dr. Wolfgang at NYU. I will see Dr. John Chabot at Columbia. Also, there is Dr. Dmitri Alden with Lenox Hill Northwell.
If they feel there is enough shrinkage after the chemo, surgery may be on the table but I want it done laparoscopically, not open. I was told by another surgeon that he may not be able to take it out once in and will have to abort the surgery (this is what I don't want). The risk of open surgery and then possibly not being able to get it out?