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Possible Stiff Person Sydrome

Brain & Nervous System | Last Active: Jun 6 10:50am | Replies (9)
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@peanut61

Anyone know of SPS specialist other than Scott Newsome at Hopkins? I was referred to him almost 3 years ago (apparently he's the go to doctor for help) unfortunately I was denied being seen because my GAD bloodwork wasn't in the thousands and that's his criteria. So here I am 3 years later in severe shape and once again told I had SPS and to see Dr Newsome
I swear I'm so close to giving up

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Replies to "Anyone know of SPS specialist other than Scott Newsome at Hopkins? I was referred to him..."
sheeva888 | @sheeva888 | Jun 6 10:50am

Hi,
Can you travel to Philadelphia? Dr. Marinos Dalakas is at Jefferson hospital. He has been studying the disease the longest. He used to work at the NIH and is currently running studies.

There is also Dr. Amanda Piquet in Colorado.

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