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DiscussionHas your doctor been straightforward about your survival?
Gynecologic Cancers | Last Active: 1 day ago | Replies (32)Comment receiving replies
Replies to "Thank you all for your input. I didn’t mean to sound like I expect my doctor..."
I was diagnosed with stage 3C endometrial cancer in Feb. I'm having my 5th chemo treatment Monday June 9th. I googled the life expectancy also but there are people in cancer group on Facebook that have been cancer free for 10 years. One with breast cancer, stage 4, just celebrated her 25th anniversary being cancer free. Every person IS different so you can't compare yourself and your treatments with every one else. I'm doing chemo and immunotherapy only. No radiation. My CA125 numbers have gone from 1641 in Feb to 105 right now. That means the chemo is working. I figure as long as the numbers are falling I have a greater chance of that hysterectomy. Don't wait for the prediction of your lifespan to start doing all those things you mentioned. Live each day as if you don't have much time left.
When I found out I had cancer, I'm 66 by the way, I drew up my will, went to the bank and had my daughter put on my account, and did a living will. That was on March 18. I got my diagnosis on Feb 28th. I actually retired from salon business at 63 due to back issues. You can also retire on disability if you're diagnosed with cancer. It's the what ifs that weigh so heavy on a person with cancer. The 3 weeks between waiting for results after PET scan and actually seeing my doctor were excruciating. I was in pain also but I already take hydrocodone for back problems but it didn't hardly touch the pain. At least at hospital I got morphine and was pain free for a bit. Like I've said before, I had my pity party for about a week or 2 where I cried daily and was comfortated by my daughter and sister who were here 2 weeks before and 2 weeks after diagnosis. My daughter, along with others in a cervical cancer support group I belong to on Facebook, said stay off Google. That information is outdated. I'll admit some of it is helpful but most of it is just statistics and I refuse to be a statistic. If you are serious about retiring then check into disability. I will tell you this little story though.
My cousin owns a school where they teach Youngs girls to be nurse techs, phlebotomy, etc. She got breast cancer over 5 years ago. Triple negative....I had to look that up....her chemo was so strong she lost her hair the very same night. She never missed any work. Her doctors have told her that she's the longest living person with the type cancer she has...longer than 5 years. I found out couple months ago her cancer is back but it's in her brain. I ask her what they were going to do and her answer was...we don't know. She's about 65 now. She posted on her Facebook page she was going to beach and taking some vacation time, long overdue she said. I really need to catch up with her and see what's going on but I feel guilty when I say how well I'm doing compared to how she's doing. Its a tough row to hoe but all we can do is pray that it's God's will. My life will be different if I'm fortunate enough to get through this.
Can't remember if you've said what type cancer you have, I've read so many I get them mixed up, I had what they thought was just cervical cancer but the end diagnosis based on scans is endometrial stage 3C. I had 5th chemo yesterday I feel great today. Just waiting for the thing to go off at about 5:30 today to give the WBC booster shots. I'll save my morphine pills for when the bone pain begins about 2-3 days after shots. Thank God I only got 1 more treatment and things are small enough for hysterectomy. If not and I need another treatment then so be it. It's out of my hands but I'm still positive the outcome will be better than what statistics say. ❤️
I know exactly what you mean. The research is really lacking. The OS for gynecological cancers is hard to understand because these diseases tend to hit the over 60 crowds and we have no idea what co-morbidities exists or the ages of people when they died.
We know that serous cancers are hard to treat. We have 0 information about other factors like lifestyle impact out comes. All the research for that information is coming primarily from breast cancer and colon cancer research. I guess no one with great resources started a foundation for gynecological cancers.
Good news though. A new random study of Colon cancer patients looked at how exercise impacts disease progression and overall survival. The research was published I believe in just the spring. Exercise program with an accountability partner reduced death rates by nearly 30%. That's better than most chemotherapies! You can look up the paper. It's all over the place. I found it being mentioned in three different articles this week. so I would assume that that would be true for our cancers as well. It would be a good idea for all of us to figure out how to budget a personal trainer into our lives. Between surgery, chemotherapy, maintenance treatments and exercise, we might live a long time. We could live longer than our peers who don't have cancer and haven't cleaned up their lifestyles. I may sound like a bit of a Pollyanna, but I am putting a lot of hope in physical fitness to keep me healthy and no more cancers
Denise