1. < Bladder Cancer

Curious about experiences/results from Adstiladrin treatments

Posted by allen1947 @allenshirl, 4 days ago

I failed the BCG treatments after TURBT. 2nd TURBT shows aggressive high grade T1 with LP invasion. Plan is for 3rd TURBT followed by Adstlidrin treatments.
I would like to hear from anyone who has had these treatments.

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

DAVID B. | @davidpball | 4 days ago

I was BCG refractory in early 2024 and underwent blue light cystoscopy with TURBT for NMIBC. I recently completed fourth Adstiladrin treatment with minimal side effects. I experienced 48 hours of flu-like symptoms (e.g. fatigue, body aches, chills) after initial treatment, but side effects diminished after 72 hours. Follow-on cystoscopies have revealed no evidence of tumors in bladder. I continue to pray for optimistic prognosis, with Anktiva a potential treatment option if Adstiladrin fails. Blessings to you and others as you travel your healing journey.

REPLY
1 reply
allen1947 | @allenshirl | 4 days ago
In reply to @davidpball "I was BCG refractory in early 2024 and underwent blue light cystoscopy with TURBT for NMIBC...." + (show)
@davidpball

I was BCG refractory in early 2024 and underwent blue light cystoscopy with TURBT for NMIBC. I recently completed fourth Adstiladrin treatment with minimal side effects. I experienced 48 hours of flu-like symptoms (e.g. fatigue, body aches, chills) after initial treatment, but side effects diminished after 72 hours. Follow-on cystoscopies have revealed no evidence of tumors in bladder. I continue to pray for optimistic prognosis, with Anktiva a potential treatment option if Adstiladrin fails. Blessings to you and others as you travel your healing journey.

Jump to this post

Thank you for sharing. I hope you continue showing no evidence of tumors. Your experience gives me hope that my treatment will be successful too. Best of luck for your continued positive prognosis.

REPLY
djr5 | @djr5 | 4 days ago

I was diagnosed with low grade, NMIBC in 12-23, had TURBT, Mitomycin and the six BCG treatments. I was clear at six months, but in 01-25 was diagnosed with high-grade, aggressive NMIBC carcinoma in situ. I received an intravesical treatment of Adstiladrin on March 20, 2025, and had a cystoscopy this morning that found I am clear of any tumors. The next Adstiladrin treatment is June 20, and then every 90 days thereafter. I had fatigue after the first treatment but felt well by a few days out. I hope that Adstiladrin works as well for you as it has for me. Godspeed.

REPLY
1 reply
allen1947 | @allenshirl | 4 days ago
In reply to @djr5 "I was diagnosed with low grade, NMIBC in 12-23, had TURBT, Mitomycin and the six BCG..." + (show)
@djr5

I was diagnosed with low grade, NMIBC in 12-23, had TURBT, Mitomycin and the six BCG treatments. I was clear at six months, but in 01-25 was diagnosed with high-grade, aggressive NMIBC carcinoma in situ. I received an intravesical treatment of Adstiladrin on March 20, 2025, and had a cystoscopy this morning that found I am clear of any tumors. The next Adstiladrin treatment is June 20, and then every 90 days thereafter. I had fatigue after the first treatment but felt well by a few days out. I hope that Adstiladrin works as well for you as it has for me. Godspeed.

Jump to this post

Congratulations on being free of tumors! Thanks for sharing your experience- it provides me with optimism going forward. Good luck and good health to you.

REPLY
Please sign in or register to post a reply.