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I had Endometrial, endometriod adenocarcinoma, FIGO grade 1 and had a total hysterectomy in 12/2024. I was staged at 2 because of greater than 80% invasion into myometrium and minor invasion into the cervical stroma. I had no other invasions anywhere, including lymph nodes. I also had wild type expression, and I did a complete genetic testing routine, and had no genetic markers or anything to watch for (surprised, because both parents, one sister, and multiple cousins had cancers).

The initial recommendation from the gyne oncologist who did the surgery was 25 sessions of external radiation as well as some number of chemo. I and my husband nearly fainted when we heard this. We sought two second opinions, and went to the radiologist that the surgeon referred me to locally. All three said absolutely no chemo. They were all mixed on Brachy or External Beam or a combo of both.

Ultimately, because I had no lymph node invasion, I went into a clinical trial with just two sessions of extremely high dose Brachy. My primary desire was for quality of life not quantity of life years. Not everyone is in the same mind-set, but I made mine very clear to the doctors. I have had no side effects from it at all, but I am suffering from sciatica due to the hysterectomy and have been doing PT. Had my 3 month exams and imaging, and all clear. Of course, I don't feel "cured" by any means; not until I at least get past the year mark.

So, bottom line, I think the thing that may make the biggest difference is the lymph nodes and detection of other cancer cells after the hysterectomy. Best to wait to hear back from your doctor after the board review. It sounds very much like he has your best interest in mind.

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Replies to "I had Endometrial, endometriod adenocarcinoma, FIGO grade 1 and had a total hysterectomy in 12/2024. I..."

I am wondering about your sciatica….I had a complete hysterectomy in November, followed by chemo, followed by brachytherapy. ……and I have been bothered by sciatica since the surgery. Did I miss the memo on this, and wonder if it’s common after surgery?