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CKD-I'm scared

Kidney & Bladder | Last Active: 11 hours ago | Replies (7)

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@cehunt57

I have been diabetic for 50 years and I have a history of high blood pressure. Those are the two most common causes of kidney disease. I was also diagnosed with CKD in 2016. My eGFR has bounced around between 14 - 42. It is currently 38. The best thing you can do is to get the diabetes under the best control you can and learn about kidney disease. It sounds like your diabetes is already improving based on the drop in A1C of 15+ to 7.5, This is a great start!
My worst A1C was 13 something. It is currently 6.6
Do you have an endocrinologist to oversee your diabetes and a nephrologist to care for your CKD? A dietician who knows diabetes and renal nutrition requirements is helpful too. It is important to learn about the types of dialysis there are and to learn about kidney transplantation. I also had a kidney
pre-transplant evaluation when my eGFR was less than 20. I was approved and accepted for kidney transplant and was listed with UNOS (United Network of Organ Sharing). My listing has since been changed to “inactive” when my eGFR improved to 34, thank God. (“active” listing is 20 or less). I also learned about living kidney donation and have been looking for a living kidney donor. Most people have two kidneys and you only need one (healthy one) to survive. Now that you have vented, try not to be scared. Be active to learn and do everything you can to take the best care of yourself that you can.

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Replies to "I have been diabetic for 50 years and I have a history of high blood pressure...."

Thank you Cheryl. I'll be meeting my nephrologist next Thursday. I don't have an endocrinologist yet, but that'll be my next step. I have a follow-up with my doctor and I'll talk to her about that and a referral to a dietician as well.
I've been deep diving into information but I'm trying to look at multiple sources.