Hi Janell, Think we may have crossed path on reddit before, your story sounds familiar. Anyways with me, I am roughly the same maybe worse. Since I last posted, I noticed a couple of things:

- Resting diastolic blood pressure has slowly crept from 88 to 95 - 98. Unfortunately, doctors are still dismissing me and won't put me on blood pressure meds because I am healthy and they dont think I have hypertension despite symptoms of palpitations and light headedness.

-I dont know if this is related, but more prone to infections like cold, COVID, and poor dental health (despite regular check ups, brushing my teeth daily, and flossing). Been getting many root canals

- Worst of it all, I was diagnosed with osteopenia, borderline osteoporosis. I am a male, 31 years old, 145 lbs, slim athletic fit, exercise daily via calisthentics, biking, and going to gym for strength training. Had to get a bone scan cause of hip pain

- Been getting 3 - 4 24 urine cortisol free tests in which they come back above elevated (usually a score of 65 - 70 in which upper limit is 50). My serum cortisol and midnight salivary comes back normal. I wont do a dexamethasone suppression test as this all started with prescribed steroid eye drops.

Overall I am losing hope and desperate to find a cure or effective treatment for this. I have seen on reddit where patients would get prescribed isturisa from JUST suppressing from a one time dex test. I am at a point in which I would like to try a small dosage of anti steroid medication to see how my symptoms get effective.