Anyone had immunotherapy for treating soft tissue sarcoma?

Posted by kenc @kenc, Feb 20 9:00am

I have soft tissue sarcoma cancer in my left thigh. Competed radiation therapy, now scheduled for surgery. The oncologist said my age limits my ability for chemotherapy, the surgeon said there is evidence of for good recovery result from immunotherapy. The oncologist first said is an avenue for treatment and said perhaps not, because she believes I have an autoimmune deficiency, because of the Colitis disease I had and was treated via surgery over a decade ago. The colorectal surgeon said no, the intestines were removed and no autoimmune disease exists from that ailment. Has anyone had experience with using the immunotherapy for treating sarcoma cancer?

Interested in more discussions like this? Go to the Sarcoma Support Group.

It took 16 months and 6 doctors to diagnose my Epithelioid Angiosarcoma-started in the head. It’s a cancer of the lining of the blood vessels. Since being diagnosed I’m on the 4th. Chemo type, and it’s been one and a half years of treatments, including immunotherapy. I did do Immunotherapy (Keytruda) for 3 months, but it unfortunately did nothing for me and was not slowing the progression. Everyone responds differently, and there are so many types of sarcomas.
Prayers for you in your journey that your oncologist finds the best treatment that works for you.

REPLY
Profile picture for ctflyr @ctflyr

Hello jreed117....
I'm not sure of you background, but unless you're a cancer doctor, your 6 months of research does not give you the authority to say..."unfortunately your life expectancy is minimal at best..."!! I would say that "opinion" does a disservice to the poster you're replying to. I believe there's hope with any cancer treatment and many success stories!

Jump to this post

Totally agree with you ctflyr
What a negative and incorrect comment!!

REPLY

Hello
I didn't express myself clearly enough.
I am diagnosed with classical HIV negative Kaposi sarcoma with lesions only on the skin of the foot, meaning there are some colored spots on the sole of the foot and on the toes. I don't know if I can post photos here. There is no other organ affected, but I would like to know more about immune treatment or other treatment. At the moment I am only taking 3 months in the summer.

REPLY

I wrote it wrong. At the moment I only take 3 months in the spring and 3 months in the fall.

REPLY

I had a large chondro sarcoma removed from my pelvis 10 years ago. A further tumour in the same place was removed 3 months ago

REPLY
Please sign in or register to post a reply.