GERD issues

Posted by janarose @janarose, Feb 29, 2012

I am 22 years old. I don't smoke or drink. Growing up I can remember having a slight hoarse voice in the morning if I ate to late at nights. But never anything too miserable. It would go away within a hour after drinking water.
March 2011 on a Wednesday. I woke up with a hoarse voice that never went away. After a few weeks I started to get slightly worried so I went to my family doctor. I went 3 times over a course of 5-6 weeks and they had no idea after giving me multiple steroids and antibiotics that did nothing. I also had no pain in the beginning my throat didn't hurt at all. My only symptom was the voice. So they sent me to a throat specialist. (Audiologist) He did a throat endoscopy and told me I have GERD. He prescribed me omeprazole 20mg once a day. I changed my diet. I stopped eating hours before I went to sleep. I have never been a soda drinker, I am not a fan of fatty foods. The fattiest thing I like to eat sometimes is chocolate.. So I gave that up. I don't eat big meals. I have always been a snacker. But I didn't seem to get that much better so back as planned in 6weeks. He told me to start taking it twice a day. my throat started to hurt and become really sore around this point. I would wake up in severe pain, and it would hurt through out the day. I would take 2- 20mg omeprazole and I would also drink baking soda mixed with water whenever I couldn't handle the constant burn anymore.. I wouldn't drink the baking soda/water at the same time as taking the omeprazole. I made sure I did that hours apart from one another.
So about 10-12 weeks later my symptoms got much worse. It wasn't working. Nothing seemed to work.
So I went back to the doctor. They did another endoscopy and my throat is more swollen than the first. It's starting to swell up even higher around where my thyroid is.
I started having chest pains and it has become hard to swallow anything.
My heart rate gets insanely high in random occasions.
I feel a knock/thump whenever I swallow.
My throat is always hurting.
I am nauseous when I eat.
It's painful to eat or drink anything; I have lost almost 30lbs because of it.

So I have had a endoscopy twice now,
I got a barium swallow done and he told me I have acid reflux. probe test done,.,Blood work....How many more test need to be done?
I haven’t heard my voice in a year now. It's to the point where I am becoming depressed and I ignore talking to people. I ignore hanging out with friends, because if I talk to much my throat becomes incredibly sore to the point where I won't be able to sleep. I can't yell or whisper. I have one tone. If I yell then I’m pretty much out for the rest of the day because my throat hurts so badly.
I am thinking about going to the Mayo Clinic. Has anyone else been through this? Do you think they will be able to help? Could it be something else?
Im desperate.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for jimaddessi @jimaddessi

The same exact thing happened to me in march of 2023. The only thing different is I started taking papaya enzyme tablets after eating. I'm 70 years old with a history of stomach problems ( stomach obstructions, ulcers, bleeding ulcers) and it's very scary feeling when gerd happens. Hopefully for you it heals up. I had endoscopy shortly after it healed and the doctor said it looked good and didn't need stretching. It's been good since (n.o.w.). I have been on protonix and pepcid for a long time and the only thing different is that my doctor put me on a low dose of paxil for anxiety. The hardest thing was giving up coffee, I now drink tea.

Jump to this post

Exactly everything you mentioned did happen to me. Right down to taking paxil for anxiety and ditching coffee for tea. The only difference now is that I stopped taking protonix but I'm still taking pepcid. I have been good for over 2 years but it"s really scary when it happens and it lasts a long time. I felt like I was going to die when it hit me. Good luck

REPLY
Profile picture for rashida @rashida

@biga282 and @waterlilly I have had GERD due to a hiatal hernia too. I have been told the hernia repair causes problems of its own, so I will not go through that. I don’t think my hernia is big enough to warrant surgery anyway, as no doctor has suggested getting it repaired.

What has helped me is: I stop eating and drinking by 8:00 p.m. - 9:00 p.m. the latest - since I usually go to bed around midnight. I take one Lansoprazole 30mg. at bedtime only. I used to use bed risers (available at Amazon and any bed and most department stores) to raise the head of my bed a few inches which helped keep the GERD episodes to a minimum. Now I have an adjustable bed, which is even better for me as I can custom raise the head of my bed (added bonus, even the foot of my bed if I ever need to - haven’t used that feature since no need yet but a handy thing to have should I need it)!

I do experience chest pains that feel like a heart attack, usually during the day if I strain my stomach muscles lifting anything heavy or even bending down to do some work. When I get those pains I take sips of water and it settles down. Sometimes I get these pains during the night though not too often, but I keep a bottle of water handy to ease them.

I also wear loose fitting clothes that don’t put pressure on my waist and stomach. I have a big enough belly that pushes against my stomach when I sleep on my side with my legs bent, causing chest pain sometimes, so I have to be mindful to keep them straight when I sleep.

Jump to this post

Just wondering if you have had your gallbladder checked for gallstones? I did heavy lifting doing highway maintenance for 20yrs and one day my stomach/abdominal pain got so bad that I could hardly move. I needed my gallbladder out because of gallstones. It felt like a truck hit me sometimes until finally I couldn’t take it anymore. But this wasn’t the cause of my Gerd I don’t believe it was my Barrett’s Esophagus . Best of luck to you!🙏

REPLY
Profile picture for jimaddessi @jimaddessi

I am a relatively healthy 69 year old male who has had bouts of gerd (acid reflex) in my life. I've had several endoscopy"s done, most recently January of 2022 diagnosis of Gastritis. I don't smoke and drink in moderation socially (not a lot). Recently I developed my worst symptoms ever, not sleeping very good ( I have elevated bed),very bad pressure in chest which creates tremendous anxiety making it had to breathe and catch my breath, floor pacing...terrible stress on body. Oddly enough it's been worse every other morning when I wake up. I take Protonix and Pepcid, Mylanta and I just got some new stuff called Nutrasec, a tablet like Tums only better that you take after eating that helps a little. I was cruising right along until 10 days ago the it hit me like a tank. I gave up coffee and changed my diet drastically and am trying to schedule another endoscopy. I'm hoping maybe my esophagus needs stretched or I'm a candidate for esophagus sphincter surgery. I feel beat and it sucks trying to sleep on my left side all night. Anybody out there having similar problems?

Jump to this post

@biga282 yes, I have had my gallbladder out. In the early 1990s.

REPLY
Profile picture for jimaddessi @jimaddessi

I am a relatively healthy 69 year old male who has had bouts of gerd (acid reflex) in my life. I've had several endoscopy"s done, most recently January of 2022 diagnosis of Gastritis. I don't smoke and drink in moderation socially (not a lot). Recently I developed my worst symptoms ever, not sleeping very good ( I have elevated bed),very bad pressure in chest which creates tremendous anxiety making it had to breathe and catch my breath, floor pacing...terrible stress on body. Oddly enough it's been worse every other morning when I wake up. I take Protonix and Pepcid, Mylanta and I just got some new stuff called Nutrasec, a tablet like Tums only better that you take after eating that helps a little. I was cruising right along until 10 days ago the it hit me like a tank. I gave up coffee and changed my diet drastically and am trying to schedule another endoscopy. I'm hoping maybe my esophagus needs stretched or I'm a candidate for esophagus sphincter surgery. I feel beat and it sucks trying to sleep on my left side all night. Anybody out there having similar problems?

Jump to this post

Okay 👍 have had an Endoscopy ? Checked for ulcers maybe? Best of luck! 🙏

REPLY
Profile picture for biga282 @biga282

Okay 👍 have had an Endoscopy ? Checked for ulcers maybe? Best of luck! 🙏

Jump to this post

Yes, and yes.

REPLY
Profile picture for jimaddessi @jimaddessi

I am a relatively healthy 69 year old male who has had bouts of gerd (acid reflex) in my life. I've had several endoscopy"s done, most recently January of 2022 diagnosis of Gastritis. I don't smoke and drink in moderation socially (not a lot). Recently I developed my worst symptoms ever, not sleeping very good ( I have elevated bed),very bad pressure in chest which creates tremendous anxiety making it had to breathe and catch my breath, floor pacing...terrible stress on body. Oddly enough it's been worse every other morning when I wake up. I take Protonix and Pepcid, Mylanta and I just got some new stuff called Nutrasec, a tablet like Tums only better that you take after eating that helps a little. I was cruising right along until 10 days ago the it hit me like a tank. I gave up coffee and changed my diet drastically and am trying to schedule another endoscopy. I'm hoping maybe my esophagus needs stretched or I'm a candidate for esophagus sphincter surgery. I feel beat and it sucks trying to sleep on my left side all night. Anybody out there having similar problems?

Jump to this post

I would go toner first gi cocktail if it got that bad. It works pretty quickly and really well. I’d also get in to see my gi dr asap. You may need an endoscopy or stronger meds. Hope you feel better!!!

REPLY
Profile picture for graceym1 @graceym1

I would go toner first gi cocktail if it got that bad. It works pretty quickly and really well. I’d also get in to see my gi dr asap. You may need an endoscopy or stronger meds. Hope you feel better!!!

Jump to this post

@graceym1 what is a gi cocktail?

REPLY
Profile picture for jimaddessi @jimaddessi

I am a relatively healthy 69 year old male who has had bouts of gerd (acid reflex) in my life. I've had several endoscopy"s done, most recently January of 2022 diagnosis of Gastritis. I don't smoke and drink in moderation socially (not a lot). Recently I developed my worst symptoms ever, not sleeping very good ( I have elevated bed),very bad pressure in chest which creates tremendous anxiety making it had to breathe and catch my breath, floor pacing...terrible stress on body. Oddly enough it's been worse every other morning when I wake up. I take Protonix and Pepcid, Mylanta and I just got some new stuff called Nutrasec, a tablet like Tums only better that you take after eating that helps a little. I was cruising right along until 10 days ago the it hit me like a tank. I gave up coffee and changed my diet drastically and am trying to schedule another endoscopy. I'm hoping maybe my esophagus needs stretched or I'm a candidate for esophagus sphincter surgery. I feel beat and it sucks trying to sleep on my left side all night. Anybody out there having similar problems?

Jump to this post

It’s three different meds including maalox higher dose, lidocaine and one more medication.

REPLY
Profile picture for gigipatula @gigipatula

Went to the GI Dr. they said to take Pepsic AC max 20mg, twice a day for 2 weeks. I took it for 4.5 days and was mentally destroyed. Anxiety, depression, and an off feeling in my gut. I quit taking it and a couple days later got this horrible bitter taste in my mouth that I still have 7 days later. I'm hoping it will go away. Has anyone else experienced this on this drug? Thankfully mentally I'm feeling better, never again will I take this drug or any PPI!

Jump to this post

I don’t know what medication is causing MY skin problem . My skin peels constantly and after a shower I go into complete molt. We have tried discontinuing a Drug I was taking for acid reflux . It was fomotidene. ( I can’t spell it I guess). Any way it’s been about 20 days . I still cannot tell if it changed anything . Anyone had experience with this drug ?? BB , Crystalena

REPLY
Profile picture for crystalena @crystalena

I don’t know what medication is causing MY skin problem . My skin peels constantly and after a shower I go into complete molt. We have tried discontinuing a Drug I was taking for acid reflux . It was fomotidene. ( I can’t spell it I guess). Any way it’s been about 20 days . I still cannot tell if it changed anything . Anyone had experience with this drug ?? BB , Crystalena

Jump to this post

Hi, @crystalena - because you mentioned a skin problem you believe is related to your taking famotidene for acid reflux, I moved your post here to this discussion where others are talking about this medication:

- Famotidine for GERD https://connect.mayoclinic.org/discussion/famotidine-for-gerd/

How long did the doctor say you'd have to be off the famotidene to tell if that was the cause of your skin peeling/molting? Are you still peeling constantly?

REPLY
Please sign in or register to post a reply.