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I'm back: increasing CA19-9 was accurate indicator of recurrence.

Pancreatic Cancer | Last Active: 4 days ago | Replies (42)
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@mrgolfer326

Thanks for your reply. Very helpful to me. Just so I understand you had the whipple surgery like me and now do chemo twice a month? How is that working out? How hard is the chemo on your body? After about eight session I'm down for the count. I've been off chemo for 5-6 months and feel great /good for me and my wife but like you my CA19-9 is raising. I have some test early this month and if need be will go back on chemo. Like you thinking of only doing twice a month.

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Replies to "Thanks for your reply. Very helpful to me. Just so I understand you had the whipple..."
carneydh | @carneydh | 4 days ago

I had whipple surgery in January 2024. The chemo has been hard on me also, I don’t really get sick, but feel bad for 4or5 days after an infusion. It has caused some numbness in my feet, my taste buds are off, lost my hair, and I get some kind of an allergic reaction, which breaks out my face, which goes away after a couple of days. I was off the chemo for about 5 months at the end of last year. My CA 19-9 went from 35 to 4700 in that time period. My oncologist wanted me to go back on chemo, but only twice a month. It has brought my numbers down significantly and the twice a month works much better than what I was doing before.

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