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@bradthompson88

How do I even know what to ask?

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Replies to "How do I even know what to ask?"

1. Ask the stage of your cancer. 2. Where is the cancer? Head, body, tail? 3. Has it metastasized? 4. Is it operable? If so when best to do this. 5. Radiation? 6. Chemotherapy? If so, which drug or drugs. 7. CT scans will be how often? 8. Test for mutations? Like the Guardant test. 9. When the endoscopic procedure was performed, did they have some tissue that could be used in immunotherapy at some point? 9. When should I get a port? (best way to get chemo)
These are just a few questions. Also, if you can, have someone with you because this conversation can be overwhelming. If you don't have someone who can be with you, ask if you can tape so you can replay.

Hi Brad
I was diagnosed over years ago and was fortunate to find the Pancreatic Cancer Action Network - https://pancan.org/. They are a terrific resource for newly diagnosed patients. With an email or a phone call, they'll send you a kit that includes questions to ask and a lot of other information you'll find helpful.
I've been donating to them ever since.
Good luck.

All good advice from 199. I'll add asking your oncologist if you have ductal cell pancreatic cancer or acinar cell pancreatic cancer. Acinar cell is rare, but from what I've learned, a little less aggressive than ductal cell.