Hi, @kiwigirl63, and welcome to Mayo Clinic Connect. It sounds like you've been through a lot of pain and significant disappointments. I'm very sorry to hear about that.

Hoping you can connect with others here in this discussion about chronic pancreatitis such as @palermo1 @cc8 @penelope52 @choosejoy and others who can empathize with your pain and provide some support as you seek answers.

When did you have your last flare? Was there something that brought you some measure of relief when that happened?

I have chronic pancreatitis, I take creon it does help with flares sometimes, but I still have very smelly poop, I had to change my diet, its a very horrible disease, but my Dr said its not related to pancreatic cancer, she doesn't think it will develop because of it , I'm not in horrible pain over the counter meds and a heating pad help me, I'm sorry about all your going through, Drs sound horrible where you live.

Oh my gosh- I thought the doctors and nurses lacked a shred of empathy here in the states but what you describe is criminal. Basically, no one is helping you and on top of that they are denying you pain control and pronouncing it is just a matter of time until you get cancer. Which by the way is so totally not true. Yes there is an increased risk for pancreatic cancer but it is basically an unquantifiable risk. And like all kinds of cancer , pancreatic cancer risk is also increased by risk factors that are in your control to modify to the positive. Risk factors like smoking, drinking, inflammation level, vitamin deficiencies , oxidative stress , chronic pain, mental stress etc. these types of additive risk factors are modifiable to a great extent with changes to diet and lifestyle changes. Things they should be helping you with. Instead , I imagine every time you see your “care” NOT team you are made to feel even worse. Do you have any other options for care where you live? Like seeing a registered dietitian? Or access to medical cannabis or CBD to control the pain? Any kind of alternative care options? Would it make sense to move back to Australia instead of staying in New Zealand? It sounds like in Australia you had more options for informed care. What you are enduring is completely inexcusable. And perhaps driven by ignorance about the condition. The hold over legacy of the time when people thought only alcoholics got Pancreatitis. So no one bothered to help them . Now it is known that is just not true. However change comes slowly to health care and whomever you are dealing with has not kept up with the times. Yes alcohol will definitely damage the pancreas but many other mechanisms do as well. Like. The gallstones you mention ( the most common cause), genetics, congenital defects, smoking, high triglycerides, infections, damage from medications taken, autoimmune pancreatitis. Both gallstones, and autoimmune are more common in women as well some of the medications that damage the pancreas , like estrogen are more commonly given to women. The medical care you are receiving is evidently completely uniformed about any of this. And if they are uniformed I do not see them ever helping you feel better. You deserve so much better I pray you can find a way forward to remain hopeful and to find someone else to help you manage your condition.

That is criminal sadism of the doctor. I'm surprised you can't go to another one. If he hates you, he's supposed to send you away.

I have autoimmune pancreatitis. This can give all the pain of cancer of the pancreas but you live to the end of your natural life. It took me til I was 71 to find out it was autoimmune, however. $400 total genome test with matching to a 15,000-genetic disorder database. Sequencing.com. However, I'm not sure if it will provide you with such a definitive answer.

Gallbladders can get infected. And "stones" come in different ways. My sister had many gallstones. I have never had any.

But green bile is from the gall bladder. It hasn't stayed long enough to start turning brown as it would if it passed through the digestive tract and out. Gallbladder infections and similar conditions can cause severe acute pancreatitis. You said you had a stone that was intermittently blocking the bile duct. That is probably the main villain for the green bile. People sometimes have more than one bile duct, and all kinds of other anomalies can occur.

If possible, try drinking warm water or warm beverages like coffee with a little milk or cream throughout the day. That's to keep the bile flowing.

As for living with pancreatitis, this has helped me. But it took experimentation. And I do use Zenpep. Without it, I would live in the bathroom.

When I was sickest, without enzymes, I could eat potatoes and applesauce. I could also eat hard candy and sugary soda. I'd still get digestive episodes, but I survived. I took vitamins and minerals because, at times, I got tetany. My teeth were very bad. It wasn't the sugar; I wasn't getting enough minerals.

Eventually, I started trying enzymes from health food stores. The problem is that they might be old or have been exposed to excessive heat. However, they helped more than they would have without them. I figured out that if I stopped eating after about 72 hours of starvation, the digestive tract pain went away, and I often got better. Later, I realized that I was exhausting the white blood cells that were attacking my pancreas, but I wasn't aware of that at the time. I didn't get pain meds because if I were at the hospital, it was because it felt to me like I was losing intestinal integrity and going to be in trouble soon. Usually, I would have stopped eating a few days before that. Also, I was aware that doctors and nurses fear painkillers. Anyway, I was on a pretty strict diet with no seafood, dairy, wheat, or odd stuff like peppers. With that and Zenpep, I stopped having the pancreatitis attacks, but I would have diarrhea. Oddly enough, fats usually pass right through and cause diarrhea, but they don't cause attacks. For me, proteins cause the attacks.

The mystery for me was why I became intolerant of hard boiled eggs and milk in my twenties—wheat in my thirties, seafood and peppers in my early fifties. Dairy substitutes became a problem due to the excess fat. I can no longer enjoy a restaurant. And my freezer is full of uneaten meats. I can't eat oranges much. Salads and such are iffy. But ever hopeful, I try, and I throw out whatever rots.

Try eating with Creon or Zenpep. A full meal seems to require 40,000 to 60,000 lipase units. Find out what you can eat. Eat vitamins and minerals when you are eating potatoes and other bulky foods. Outlive that doctor and dance on his grave.