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Anyone taking Linezolid? 3 times per week?
MAC & Bronchiectasis | Last Active: Jun 3 5:01pm | Replies (8)Comment receiving replies
That's exactly what I have, M. Abscessus, subspecies abscessus. Ugh! I'm sorry that you have to deal with that. Can't your drs jump through the hoops for you? Or contact the doctor for a consult? NJH is trying to get the word out about the Linezolid dose.
Do you know what else you will be taking? Do you have any cavities?
Replies to "That's exactly what I have, M. Abscessus, subspecies abscessus. Ugh! I'm sorry that you have to..."
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No cavities. Just nodules and areas of atelectasis. Good to know about the linezolid dose. The docs in Toronto are up on the latest and even writing the book on some of it. My buddy there is a patient of one of them, Dr Marras. He sounds awesome. He is giving an online presentation on June 16th. Can't wait. Been waiting 4 weeks for the ID doc to get back to me with a plan. If it looks too toxic i am going to ask her to consult with the Toronto group. We have to advocate for ourselves, yes? i think even the experts don't have all the answers. Everyone is different.