I understand and sympathize with your frustration. I had a TKA 3/25 and an MUA 3 months later. I did many, many PT sessions and home exercises, but could not achieve better than 115 degree flexion…temporarily! The flexion slowly over three years reduced until I was at 75 degrees. I did more PT last summer and managed to attain 85 degrees. I really wanted to bicycle and ski again, so agreed to have an arthroscopic lysis of adhesions and MUA. By the time of surgery, in Mar. 2025, I had regressed to about a 75-80 degree flexion. After the surgery, during which surgeon removed lots of fibrosis and flexed knee to 125 degrees, I again had PT 3 times weekly for 2 months. By the end of this time, flexion was stubbornly at 90 degrees. I am trying to do home exercises and walking to maintain this flexion, but feel that I am, again forming scar tissue and progressively losing flexion.
One of the worst aspects of this condition is feeling that one is being “blamed” for not doing enough to prevent the arthrofibrosis from returning. It is a painful condition and the swelling after walking/standing is terrible. At this point, I regret having any surgery on the knee!