Connect
← Return to Do you need to sanitize your toothbrush every day?
Discussion
Do you need to sanitize your toothbrush every day?
MAC & Bronchiectasis | Last Active: Jun 5 10:15am | Replies (77)Comment receiving replies
Yes, she is kind and has spent a great deal of her time on this. It is appreciated. But she is also giving medical advice. She is selective in what she posts. I was deleted because I mentioned steroids, but some others have been able to post that word. I kept posting that I was getting worse and the doctor wanted to do a bronchoscopy and she replied with how dangerous that was as were the steroids and antibiotics. At one point I told her I could no longer take care of myself and were there exceptions to taking steroids and antibiotics. She deleted the post. I almost lost my life. It has been 2 months and I am still trying to recover.
Replies to "Yes, she is kind and has spent a great deal of her time on this. It..."
I didn't get kicked out because I mentioned steroids twice, but got pm's. I first mentioned them because it helped my chronic little cough when I'd been on albuterol for 9 months with no change. The steroid inhaler had it gone by two days. . The second time is when I said steroid nasal spray helped with my post nasal drip. She didn't comment on the posts, but deleted them quickly and pm'd that those weren't protocol. Unless readers were quick, they never knew something else worked for people. Both my comments had been in response to people's questions about the issue.
I agree airway clearance info is good, but a single approach to a problem is not always enough.
I'm so sorry you went thru all that.
Connect
Really sorry to hear this. Seems like a very stark response to someone who is suffering.