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Recently diagnosed w/focal seizures & have breast cancer
Epilepsy & Seizures | Last Active: Jun 2 1:22pm | Replies (5)Comment receiving replies
My oncologist made the decision to stop using hydrocodone while on Keppra. The metastatic breast cancer spread to my spine and made L2 - L5 vertebrate a mess.
I have been using Rick Simpson Oil (medical cannabis) on a daily basis since 2019 , but for the severe pain my go to was hydrocodone. Neither my oncologist or neurologist mentioned anything about a fentanyl patch.
I was unaware that the epilepsy could progress through all the stages you mentioned.
Replies to "My oncologist made the decision to stop using hydrocodone while on Keppra. The metastatic breast cancer..."
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@lluedke
Did you also have MRI of your cervical and thoracic spine? Did they need to fuse your spine or put in hardware? Any compression of spinal cord/nerve roots can make balance an issue.
Were they able to confirm on your brain MRI that there is no spread there that is causing the seizures? You really want to be careful not doing anything alone where you could have a seizure and have difficulty breathing (swimming, taking a bath, being in a hot tub), driving and walking near where you could fall (like at the top of a flight of stairs).
Be very careful with fentanyl pain patches. There can be problems with them and people have overdosed because the medication was absorbed too quickly.
Where is your biggest location of pain? Have you had any steroid injections for inflammation? Have you tried any muscle relaxers? There is a medication that treats bone pain that is not an opioid (Suzetrigine/Journavx). Have you had this mentioned as an option?
1. https://www.mdanderson.org/cancerwise/6-pain-management-options-for-cancer-patients-you-might-not-know.h00-159306201.html
2. https://www.cancercenter.com/community/blog/2020/08/cancer-and-bone-pain
3. https://www.medicalnewstoday.com/articles/bone-cancer-pain-relief
4. https://www.drugs.com/keppra.html
5. https://www.cancer.org/cancer/managing-cancer/side-effects/pain/cancer-pain/non-opioids-and-other-drugs-to-treat-cancer-pain.html