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Epilepsy & Seizures | Last Active: 2 days ago | Replies (6)
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Of course from a legal perspective I’m disabled. But I am not consistently impaired by epilepsy. I find the unpredictability of seizures hard to handle. It’s not like, if I don’t follow the diet instructions, my blood sugar will be high and bad things will happen. Or if I don’t take my med’s, my blood pressure will be too high and bad things can happen. It’s like, I can do everything just right, and yes, a seizure. That’s what makes having epilepsy so difficult for me.
Replies to "Of course from a legal perspective I’m disabled. But I am not consistently impaired by epilepsy...."
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You nailed it. I was thinking about the same thing today, and our ultimate challenge is not thinking about it too much. Like, if we think about it too much, we become hypervigilant to our seizures, which leads to other problems like stress and anxiety which leads to more seizures which leads to greater hypervigilance, which leads to more stress, and on and on it goes. There are times that I might consider that having another chronic condition might not be as bad because then you have more known variables. In contrast to our situation, we have to consider our symptoms daily because we have to stay safe. That is why I feel you need to be a "rock star" to live with our chronic condition, because we also have to master our fear on top of our symptoms.