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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 5 hours ago | Replies (1159)Comment receiving replies
I'm so glad to hear positive results for you. I had MALS surgery in 2013. Went to Mayo in 2019 and they suggested the injection. I'm going to a university in my area and getting worse. I too am just starting to have moderate to severe pain that runs into my left lower back, this is a new symtom. In hospital x2 the last 2 weeks. Passed out end of Oct at work was diagnosed with ortho hypertension. My BP is high again ....when diagnosed with renal and carotid FMD. I now can't drink without getting sick. The CAT scan showed stenosis in celiac artery which is mild.?? Doctor's are saying they don't know what this is. It is same symptoms as when I had MALS. I did take a drug Rifaxinin which seemed to help with my SIBO. I'm not sure what I'm going to do. Not able to eat or drink is not a healthy quality life. Wishing you the best!!
Replies to "I'm so glad to hear positive results for you. I had MALS surgery in 2013. Went..."
Have you been checked for pots?
Hi @jayhawk57
Something I should have mentioned is if you are having difficulty eating make sure you see a dietician. I didn't see a dietician straight away and suffered the consequences. I became extremely deficient in various vitamins and minerals like vitamin c, vitamin d and iron; I had gum disease multiple times and lost teeth. I had terrible headaches, extreme brain fog, lethargy and the list goes on.
Although the dietician didn't know anything about MALs, the first thing she did was prescribe high dose multivitamin and mineral complex, (Forceval Capsules.) Educating the dietician on the effects of foods on MALs sufferers means there is another clinician on the care team and will help others who present with MALs symptoms.
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Sorry to hear you are having so much trouble. I can relate to you not being able to eat anything. I've not had a proper meal in over a year and I've been living on corn snacks since last October. It's such a struggle to keep the weight loss to an absolute minimum. Let's hope you get a breakthrough very soon.