1. < Prostate Cancer

Recurrence in pelvic lymph node

Posted by treesqueak @treesqueak, May 25 5:18pm

I'm meeting with my radiologist this week, and would appreciate your suggestions about questions I should ask. After a prostatectomy five years ago (Gleason 8), this is my second recurrence. First recurrence was biochemical two years ago followed by a six month Lupron Depot shot and 36 rounds of radiation to the prostate bed. Now almost 5 years from diagnosis with PSA rising to 1.2, a PSMA showed a lesion in a pelvic lymph node. We are going to discuss spot radiation plus another 3-6 months of Lupron. What questions should I ask?

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treesqueak | @treesqueak | May 31 7:23pm

Phil,
Thank you so much. Yes, the earlier radiation was to the prostate bed only. Since you just completed what I'm about to begin, please let me know how you experienced the 25 sessions at Sloan, and any advice you have for me. I’m 78, and I have a full summer schedule of activities. Did you, for example, need to curtail some of your schedule due to fatigue?

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2 replies
heavyphil | @heavyphil | Jun 1 7:57am
In reply to @treesqueak "Phil, Thank you so much. Yes, the earlier radiation was to the prostate bed only. Since..." + (show)
@treesqueak

Phil,
Thank you so much. Yes, the earlier radiation was to the prostate bed only. Since you just completed what I'm about to begin, please let me know how you experienced the 25 sessions at Sloan, and any advice you have for me. I’m 78, and I have a full summer schedule of activities. Did you, for example, need to curtail some of your schedule due to fatigue?

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Honestly, being retired with no kids or grandkids I AM my own schedule😉. Every day revolved around those treatments - wake up, mandatory BM, work out, go to Sloan (3hrs total with travel time), come home, eat dinner, TV and bed. My wife by my side the entire time - now THAT’s true love!
Yes, I was fatigued by the ADT/radiation, but when your life’s at stake you just do what you gotta do.
Phil

REPLY
ecurb | @ecurb | Jun 1 8:09am
In reply to @treesqueak "Phil, Thank you so much. Yes, the earlier radiation was to the prostate bed only. Since..." + (show)
@treesqueak

Phil,
Thank you so much. Yes, the earlier radiation was to the prostate bed only. Since you just completed what I'm about to begin, please let me know how you experienced the 25 sessions at Sloan, and any advice you have for me. I’m 78, and I have a full summer schedule of activities. Did you, for example, need to curtail some of your schedule due to fatigue?

Jump to this post

Fatigue is my biggest issue after all the ADT treatments. Been off of them 5 months now- still have afternoon fatigue. Could be my age of 76. Can’t grow sideburns yet so… I know my testosterone is still way low.

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1 reply
heavyphil | @heavyphil | 6 days ago
In reply to @ecurb "Fatigue is my biggest issue after all the ADT treatments. Been off of them 5 months..." + (show)
@ecurb

Fatigue is my biggest issue after all the ADT treatments. Been off of them 5 months now- still have afternoon fatigue. Could be my age of 76. Can’t grow sideburns yet so… I know my testosterone is still way low.

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Absolutely. I am 4 months post ADT, 6 post SRT and still fatigued in the PM. My RO said lingering fatigue seems more noticeable in pelvic radiation patients.
Phil

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1 reply
ecurb | @ecurb | 6 days ago
In reply to @heavyphil "Absolutely. I am 4 months post ADT, 6 post SRT and still fatigued in the PM...." + (show)
@heavyphil

Absolutely. I am 4 months post ADT, 6 post SRT and still fatigued in the PM. My RO said lingering fatigue seems more noticeable in pelvic radiation patients.
Phil

Jump to this post

Nice to know about Pelvic radiation effects- thanks

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1 reply
ecurb | @ecurb | 5 days ago
In reply to @ecurb "Nice to know about Pelvic radiation effects- thanks" + (show)
@ecurb

Nice to know about Pelvic radiation effects- thanks

Jump to this post

So why didnt my RO tell me about this as I have/had two pelvic lymph nodes affected. Wonder if the afternoon fatigue ever dissipates- this is getting old- want to go to car shows but I m too tired too. I have dukes of Hazard car and 73 Roadrunner B+ condition. Have to leave the last summer cars shows early= too fatigued .

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treesqueak | @treesqueak | 5 days ago

The study I mentioned about full pelvic radiation was just published in Lancet in May 2025. Perhaps your RO didn’t know about it.

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