← Return to Recently diagnosed w/focal seizures & have breast cancer

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@jakedduck1

@lluedke
I want to share my experience living with epilepsy for the past 59 years, which has included absence, focal aware, focal impaired, tonic-clonic seizures, and even status epilepticus. Throughout this journey, I’ve relied on opioids for pain management. I understand the concerns about pain medications potentially lowering the seizure threshold, but it’s important to note that this isn’t the case for everyone. Personally, I used the Fentanyl Patch for a number of years without experiencing an increase in the frequency or severity of my seizures.

I’m curious about the reasoning behind the decision to discontinue pain medication. None of my doctors ever suggested we stop my pain management plan, and I appreciate how crucial it is to find the right balance.

Take care,
Jake

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Replies to "@lluedke I want to share my experience living with epilepsy for the past 59 years, which..."

My oncologist made the decision to stop using hydrocodone while on Keppra. The metastatic breast cancer spread to my spine and made L2 - L5 vertebrate a mess.
I have been using Rick Simpson Oil (medical cannabis) on a daily basis since 2019 , but for the severe pain my go to was hydrocodone. Neither my oncologist or neurologist mentioned anything about a fentanyl patch.
I was unaware that the epilepsy could progress through all the stages you mentioned.