← Return to Screaming when regaining consciousness after seizure

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@sweetcheeks33
I embrace my life fully, and while I sometimes experience postictal aggression, it’s just part of my journey. My neighbor has heard my epilepsy cry—a loud moan that occurs when the contractions force the air from the lungs and passes by the vocal cords creating the noise. I don’t feel embarrassed about it; in fact, I appreciate the concern from those who call or come over.
I once had a seizure that led me to fall through a wall into the next duplex—no big deal. Epilepsy does not define me; I live on my own terms. If a seizure happens, it happens. It’s not my responsibility if someone feels disturbed or scared by it; they need to understand that it’s their issue, not mine. For 59 years, I’ve refused to let epilepsy dictate my life. I take pride in who I am and what I can do, unashamed and unembarrassed. I go where I want, do what I want, and live life to the fullest, always in control of my path—not my condition. Epilepsy can destroy your quality of life if you allow it.
Take care,
Jake

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Replies to "@sweetcheeks33 I embrace my life fully, and while I sometimes experience postictal aggression, it’s just part..."

Hi Jake, thank you. You are quite right that we should live our lives as normally as we can. Up until now very few people even knew I have epilepsy, it was on a need to know basis only as my seizures were well controlled. If I felt a bit off then I would stay at home just like anyone does if they're not feeling well. However, the amount & severity has now changed though. Since the pandemic I have had about 6 grand mals compared to the odd rare one once in a blue moon previously. If it was just the increase I could cope with that, unfortunately the screaming is like I'm being attacked. Its also the first major one I've had at night which is very concerning. My neurologist is trying to arrange an appt with a specialist epilepsy nurse for me until my next appt next April. To quote Gloria Gaynor 'I will survive!!'