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DiscussionDiagnosed with sarcoma? Let's share
Sarcoma | Last Active: 28 minutes ago | Replies (949)Comment receiving replies
Replies to "Good morning Can you give me more details? When did the disease start and what treatment..."
I discovered the disease in 2023 after 1 year in which I went to several doctors and they did not know what I had. In my case, it manifested itself in the form of spots on the lower limbs, more precisely on the fingers and soles of the feet. After biopsy and immunohistochemistry, the diagnosis of Kaposi's sarcoma was made. That year I had radiotherapy on one leg and the following year on the other. After radiotherapy, the skin burned and opened, fell off and now it looks good. Radiotherapy weakens the immune system even more, the skin becomes dead and does not recover and the dermatologist forbade me from having radiotherapy anymore. I go for a check-up in Italy every 6 months and as a medicine I take something that contains vitamin D.
Not clear when it started. It took several months before the medical profession settled on the finding that the large lump I had was sarcoma cancer. The treatment was radiation and surgery. They since have discovered a very tiny tumor, which will be treated by chemo at first, then perhaps radiation, then perhaps surgery and immunotherapy.