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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 5 hours ago | Replies (1157)

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@tonlop628

Hi, I am getting ready to have the CT scan this week for MALS. I already had the ultrasound and my cardiologist who treats me for Dysautonomia says I do have MALS. Is the surgery really as scary as it sounds?

I have been stressing about it but really cannot live with the pain and nausea I have. I have a bunch of other syndromes with one being Fibromyalgia. The MALS symptoms seem to be triggering my other pain from Fibromyalgia. I just need relief and now I feel that I cannot eat or workout. I am glad I found this group for support.

Tonya

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Replies to "Hi, I am getting ready to have the CT scan this week for MALS. I already..."

Yes, mals will amplify all other syndromes, etc. there’s a very informative and supportive MALS group on Facebook. They have been a lifeline for me. It’s called Mals Awareness. I couldn’t have made my way through all the road blocks and detours without them. This syndrome is a bear and it only gets worse with time. You also have to have the nerves addressed not only the ligament. Hope you can join the group.

I did not find the surgery to be scary. Mine was in 2015 and laproscopic. Basically all I remember about that day is being on a gurney at 5 a.m. and having the surgeon greet me. When I woke up, the rest of that day was a fog of IV pain medication. I remember trying to watch football and having no idea what was going on. The 2nd day they switched me to oral pain meds and I was allowed to get up and walk around, but because I developed a slight fever they kept me another night. After that I was home and back to work the next week.

Only bummer is I'm looking at a 2nd surgery now because the first surgeon didn't do enough, or remove the celiac ganglion. I had a milder version of the first round (pain/nausea in the mornings and when I work out). Hopefully they can take care of yours adequately the first time.

Hi @tonlop628

Welcome to the group. @lasirvent has mentioned the longer it goes on the worse it gets. I can vouch for this as my operation was cancelled here in the UK last April. I was already at a chronic stage with only a few foods that didn't send the pain into the stratosphere. Nearly a year on and there are no foods I can eat, I am losing 2kg a month which provides another challenge; keeping my BMI above the minimum for surgery.

Try not to stress about the surgery, in my eyes it is a far better alternative to worsening pain. Keep us updated.

Mark

Hi @tonlop628

How are you getting on? Have you had your CT scan?