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@colleenyoung

@taracronwall, welcome. I'm glad you found this group too. I can hear the desperation in your voice. It's understandable that desperate situations often lead to trying everything. However, I caution about using repurposed medications, like fenbendazole and ivermectin. There's a lot of information as well as misinformation circulating about these repurposed deworming drugs on social media. It sounds like you've suffered some unwanted consequences from them. Here's a clear and well-written article about repurposed drugs being researched for cancer.

- Separating fact from fiction: repurposed drugs in cancer treatment https://www.anticancerfund.org/en/blog/separating-fact-fiction-repurposed-drugs-cancer-treatment

As a single mom, you want to do everything to be there for your children. Getting a second opinion is a good idea. If you want to pursue getting a second opinion at Mayo Clinic in Florida, Here's how to start. http://mayocl.in/1mtmR63

When were you seen at Mayo in Arizona? Is Florida closer for you?

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Replies to "@taracronwall, welcome. I'm glad you found this group too. I can hear the desperation in your..."

Hi Colleen I was seen at Mayo in Scottsdale when I lived there in 2012. I’m in Nokomis FL now.
I don’t use ivermectin or fenben to shrink my tumor I use it proactively for colon cancer prevention.
I was specifically interested in treatment options for paraganglioma such as Lutathera or PRRT versus electrostatic radiation which I believes just possibly halts the tumor from growing larger but can damage and destroy vital structures and possibly have side effects such as a feeding tube (so says the team at Tampa general) if I go ahead with it. So I figured I would try to get someone else’s take on treatment but u errand bit is rare and so are both of my tumors that are surgically unsafe to try to operate on.