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DiscussionParaganglioma / Carotid Body Tumor Question
Neuroendocrine Tumors (NETs) | Last Active: Jun 8 4:41pm | Replies (136)Comment receiving replies
Replies to "@taracronwall, welcome. I'm glad you found this group too. I can hear the desperation in your..."
Hi Colleen I was seen at Mayo in Scottsdale when I lived there in 2012. I’m in Nokomis FL now.
I don’t use ivermectin or fenben to shrink my tumor I use it proactively for colon cancer prevention.
I was specifically interested in treatment options for paraganglioma such as Lutathera or PRRT versus electrostatic radiation which I believes just possibly halts the tumor from growing larger but can damage and destroy vital structures and possibly have side effects such as a feeding tube (so says the team at Tampa general) if I go ahead with it. So I figured I would try to get someone else’s take on treatment but u errand bit is rare and so are both of my tumors that are surgically unsafe to try to operate on.