Hi @tlkc1

You mention blood pressure something which I think is very important to keep track of and talk to your physician about. I'm not sure if you are taking any pain medication, but what you take can have a marked effect on your blood pressure.

I was on high dose morphine for over 8 years with the pain specialist putting me on transdermal patches. In the last 2 years my blood pressure was bottoming out. I was suffering some severe cardiac symptoms with chest pains that sent me to A&E on several occasions. Last year my average blood pressure was 85/45, the lethargy was brutal and I found myself passing out after eating something as basic as breakfast cereal.

I decided last year to take myself off morphine and find other ways of managing the pain. The cardiac symptoms disappeared and my BP improved too. I still get low BP but I don't pass out quite as often. I have compression in more than one artery which my surgeon said he will try and repair.

If you are concerned talk about it with your MALs team and Dr Hsu. Just remember you are the patient you have a right to be heard.

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