Hi Korinja,
My heart goes out to you. I can relate to your situation.
I met my Oncologist in October 2024. Other doctors said she was wonderful, delightful, the best.
After I met her I had an uneasy feeling. She kept me waiting for one hour. She dressed like she was ready for a fancy cocktail party complete with stiletto heels.
Each visit was worse than the one before it.
I got a reference to another Oncologist early on and I had an appointment set up. I was told that he was my doctor’s partner. I thought that meant that they were a couple so I decided to go back to the original doctor and give her another chance. Big mistake.
She had one of three responses to every question: “No”, “I don’t know,” or to change the subject so swiftly it was like sleight of hand. I started taking my husband with me because he has an excellent memory. She would not answer his questions either.
On the day of the hysterectomy she was in a hurry. (I had completed six weeks of chemotherapy and radiation as well as brachytherapy surgery.)
I tried to tell her that I was not going to continue with chemo or radiation. She snapped, twice “that is completely inappropriate – we are here for surgery!”
She did not come to see me after the surgery or even to sign me out. After checking several times, the nurses released me without her signature. I didn’t hear from her for 3 days. I was in excruciating pain and my upper legs were numb on both sides, with dagger-like stabbing pains. She said this sometimes happens after surgery. I told her that it fits the description of neuropathy. She snapped, “It is not neuropathy!” But that’s exactly what it was and still is five months later. I can’t drive a car or descend the flight of stairs from my apartment.
I finally got an appointment with the doctor I originally wanted to switch to (based on a recommendation I received from a fellow patient I met in the radiology waiting room.) I asked how she liked her oncologist. She said, I love him!
He answers every question, he is an excellent listener and he is compassionate and empathetic.
So I’ve seen my new Oncologist once and he was everything I hoped for .
He said, you need to see a neurologist before we do anything else.
I apologize for the length of this post.
@hort37b460 What a terrible and frightening experience with your prior oncologist. When I hear these stories I wonder what inspired this physician into their speciality. I often think what it’s like to be in their shoes (or stiletto heels! 👠) with me in front of them as a patient.
I’m so glad that you decided to change oncologists. You found a physician you feel comfortable with and hopefully will answer your questions with compassion. I hope the neurology referral is soon.