Just found this group. I have had a parapharangeal ganglioma since 2012. Mayo in Scottsdale see the best Dr Michael Hinni who said leave it alone and cannot biopsy because too dangerous and too vascular. Fast forward my symptoms have gotten acute since Jan of this year, a carotid body tumor has now shown up, went through iterate scan recently and a vestibular test and mri CT’s parietal. Seeing a team at Tampa general. The ent says no radiation or a feeding tube is in my future. I’m 53 and medical assistant neuromuscular therapist and aging dancer. My balance has gotten way worse my swallowing is scary and choke daily, I have hit my head at least 6 times now splitting it at work. Tip over while rooming patients and they are talking electrostatic radiation. I read up on Luthera??? I have been doing everything g like fenben and ivermectin to smearing ivermectin paste on my neck tumor which is causing hearing issues shushing and tinnitus and pressure on my jaw and ear and pulsing pain throbbing. I’m not sure what the future holds, what job I’ll be able to have and they only said no surgery because this thing encompasses vagus, jugular and carotid arteries. So I don’t sleep have two children single parent and don’t know which way to go with this. Who has any experience in going down this road???? Please someone help. I’m due to see an endocrinologist soon. Have an appt at Moffit to see what they think as a second opinion. Should I go mayo instead???? What other immunotherapies work??? I can’t do hyperbaric oxygen because of the ear pressure already. Thank you for the support in advance🌸🙏