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Thank you very helpful. Just what I was looking for. If I may ask : are you on chemo and if so continuous or have you stopped and started? My surgeon at MSK in NYC tells me if the Pet scan does not show a tumor don't bother with chemo. Any comment.

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Replies to "Thank you very helpful. Just what I was looking for. If I may ask : are..."

Didn’t get my last session of chemo due to the fact my dr had me scheduled to start Naliri which I read online can cause exacerbation of interstitial lung disease (ILD). Somehow I developed ILD back in 2019 or before; it leaves a scarring on your lungs and basically makes it more difficult to breathe, but I already suffer from asthma anyways so I had to leave my chemo session because I just didn’t feel right getting Naliri without getting a 2nd opinion first. I asked if I could just get gemzar that day but was denied because my dr says it doesnt work anymore (it does keep my cancer from going crazy high rapidly, but that doc refused to acknowledge that) I’ve only had that oncologist since January of this year and they are at the city of Hope; a facility with a decent reputation. I’m glad I changed oncologists as my new old oncologist who I originally started out with was aware that Naliri may cause ILD to get worse. I may have to go back on gem abraxane which I truly hate the idea of. I do start SBRT radiation on my small liver lesion this week. If you’re brain is sending you a red flag about a drs opinion (no matter if they are associated with a facility with a stellar reputation) you need to get a 2nd opinion, in my opinion, to relieve any regrets you might have later on. It’s a patient’s prerogative to get a 2nd opinion.