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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Jun 26 3:28pm | Replies (512)

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@marshgirl24

I agree @otas. I was diagnosed with ILC last August. I'm coming up to my one year mammogram but my dr is not considering a breast MRI, which is done as a matter of course at MD Anderson and at Mayo. I'm to have a mammogram and ultrasound. Ultrasound didn't even pick up my architectural distortion. Lobular cells lack the protein that makes ductal cells clump (and be felt) I found myself explaining this to a radiation oncologist last week. I wonder if for years they have approached lobular the same way they treat ductal. If they don't catch lobular early, I imagine you end up with stage 2 or 3. (and I could be wrong about this.) It's frustrating. We can't all go to MD Anderson or Mayo for appropriate treatment. I'm beginning to think that physicians simply don't have time to stay up on this.

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Replies to "I agree @otas. I was diagnosed with ILC last August. I'm coming up to my one..."

Thanks marshgirl, I know that for a few years now I have had MRI's done yearly. My mammograms even this month did not show cancer. I guess we have to advocate for ourselves
now and ask to have certain tests done at least for our own sense of well being.

Yes, same thing happened to me. First one they found was during my annual mammogram. My local surgeon didn’t call for a MRI. Mayo requested during my second opinion. They found 2 more cancerous spots. Went from a lumpectomy to a full mastectomy with chemo and radiation. I would insist on a MRI if I were you. Ultrasound and mammogram didn’t pick up either of those.