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I'm back: increasing CA19-9 was accurate indicator of recurrence.

Pancreatic Cancer | Last Active: 3 days ago | Replies (42)
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@mrgolfer326

Thanks for your reply. The onco's all seem to want you to go with chemo and stay on it. My surgeon who is at MSK in NYC says if you don't have a tumor no need to get chemo. If you find a tumor we will go to radiotherapy and then go from there. I have been off chemo for 5-6 month and now feel better prepared if I need radiation/ chemo. For me chemo is so hard on the body I'm not sure I could take a steady diet. Thanks again. By the way have you had any indication of the value of the Signatera blood test and the CA19-9 ?

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marienewland | @mnewland99 | 5 days ago

CA19-9 can be a very good indicator of cancer activity, but it doesn’t work the same for all mutations. Most with BRCA gene, CA19-9 is not a good indicator. I had KRAS12D and TP53 and ATM mutation (unknown significance base substitution) and it’s an excellent indicator and allows drs to know when small tumors or lesions, in my case, are coming back so we find things early and can treat them when small. At the end of March my CA19-9 was 224 when just 2 weeks before it had been 12 and it was that number since October 2024 following my MRIdean treatment. Now we are in the 300’s; it grows very quickly for me. Find out what your mutations are. For me, Signaterra lags behind any CA19-9 results. Hope this helps.

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