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I'm back: increasing CA19-9 was accurate indicator of recurrence.
Pancreatic Cancer | Last Active: Jun 3 3:49pm | Replies (42)Comment receiving replies
Thanks for your reply. It helped. My surgeon who is at MSK in NYC told me unless you have a tumor no need to get chemo . If we find a tumor then go with radiotherapy then we will discus chemo which is so hard on the body. What is your experience with Signatera blood test and CA-19-9 as an indicator of where your cancer is going. My onco tells me the same thing about chemo however the 5-6 month break was good for me and my wife. I think the surgeon gave me the best advice and if I need chemo I'm stronger and better prepared. Thanks again.
Replies to "Thanks for your reply. It helped. My surgeon who is at MSK in NYC told me..."
@mrgolfer326 Forgot to say my husband never had a Signatera blood test - onco's opinion was if CA19-9 is high, no point doing the Signatera.
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We have to trust our surgeons and oncologists. This forum is good to hear what others say. But as many here recommend, be your own advocate. If you are concerned, do something about it. If your markers can go down and is now on an upward trend, insist on some tests. Some people have markers that are in the hundreds without cancer - those people may not need to worry. My husband's markers were within normal at one point and then climbed without the scans picking up anything. Recent developments show that his markers was telling us something. Our surgeon was concerned 2 months ago but our onco was not - we did nothing then but now we have to deal with the rising markers.