@dannoyes I can relate. I went many years seizure free, only to suffer I seizure at work that nearly permanently took me out. This is now 5 years ago. I filed for disability, and got it, because, there was no was I could safely get to work, yet alone stop having seizures. I decided that until I could get them under control for about 2 years, then I would try and go back to work. That is my goal. However, according to what they consider a disability, seizures are considered a disability, and I know for some people it is hard to consider themself in that category, its like we are put in this category that we dont necessarily want to define us, but, I look at it like, if I have to give myself the space and time to get to a better place, out of safety, respect for my body, I will do that. We as seizure patients endure alot, mental, physical, emotional, spiritual and I think the best thing for us is to cut ourselves some slack, to not be critical of oneself. Sometimes it is hard enough to function without having the pressures of all the other things that happen in life and we put upon ourselves. Sometimes we are our own most critical source. I find this to be very negative to the spirit. I think if we take day by day, and look at the things that we are doing, and moving towards rather than looking at the things we’re not doing. With health, hope, happiness, I pray we will all be there one day. I never give up in that fact.
Of course from a legal perspective I’m disabled. But I am not consistently impaired by epilepsy. I find the unpredictability of seizures hard to handle. It’s not like, if I don’t follow the diet instructions, my blood sugar will be high and bad things will happen. Or if I don’t take my med’s, my blood pressure will be too high and bad things can happen. It’s like, I can do everything just right, and yes, a seizure. That’s what makes having epilepsy so difficult for me.