Ugh! So sorry for you situation. Many of us have felt your frustration. The good news is you have a diagnosis. I live in the Dallas area and really had hoped to find a doctor closer than the Cleveland clinic and or the Mayo Clinic (although I would have been open to it if I had no other option). Once I got the diagnosis the search was on for a doctor. It took 3-4 months between diagnosis and surgery. There is a doc in Fort Worth with a lot of experience with MALS. I contacted his office. They told me to fax all my records and then called to tell me he would not take my case. No explanation.

That was very disappointing. After the diagnosis I tried waiting to see if I could live with it. So to be turned down after deciding to move forward made me question everything again. My GP recommended one of the best vascular surgeons she knew. When I saw him he said I know who you need. With no hesitation he recommended another vascular surgeon who would do it robotically. I met with him and had the surgery.

Al that to say, be encouraged. From the stories I have read on here, it is not a quick process. I know that feeling of just wanting to rid yourself of the constant pain and get back to normal. Hang in there. You will make it. The counseling is good. You need to take care of yourself in other ways. Counseling, foot massages, whatever makes you feel good because the constant pain and awareness of your condition can suck the life out if you. Not to mention people like your family And friends who just don’t get it.

Keep hanging on!