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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: Jun 26 3:28pm | Replies (512)Comment receiving replies
Hello Tamworth, I was diagnosed with ILC a couple of years ago, I had a lumpectomy, 5 sessions of radiotherapy & am now on Anastrozole. But to me it has become quite apparent that the approach/treatment to ILC & DLC seems to be the same. It seems there is not enough research done on LBC and therefore the treatment is the same
Replies to "Hello Tamworth, I was diagnosed with ILC a couple of years ago, I had a lumpectomy,..."
I agree more research has to be done because my mammograms haven't shown anything. I first had ultrasounds done. That is where the first cancer was found. I had both ultrasound and MRI done last year and they were keeping their eye on an area. This year's MRI confirmed the cancer diagnosis. Needless to say I am a little freaked out now waiting for the surgery.
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I agree @otas. I was diagnosed with ILC last August. I'm coming up to my one year mammogram but my dr is not considering a breast MRI, which is done as a matter of course at MD Anderson and at Mayo. I'm to have a mammogram and ultrasound. Ultrasound didn't even pick up my architectural distortion. Lobular cells lack the protein that makes ductal cells clump (and be felt) I found myself explaining this to a radiation oncologist last week. I wonder if for years they have approached lobular the same way they treat ductal. If they don't catch lobular early, I imagine you end up with stage 2 or 3. (and I could be wrong about this.) It's frustrating. We can't all go to MD Anderson or Mayo for appropriate treatment. I'm beginning to think that physicians simply don't have time to stay up on this.