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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 6 hours ago | Replies (1155)Comment receiving replies
Thank you! She does have that low back pain. She already has so many congential anomalies and they think that part of her bowel is not working from previous surgeries and that is what is causinf the pain right now. But who knows. You feel like you are in a hamster wheel just spinning around hoping someone will help. We have never seen her in so much pain. It's debilitating. She is on toradol and tylenol and something for SIBo and she is still at a 6 or 7 for pain. Since Covid is going on no elective surgies. As far as I am concerned this is not elective.
We think its MALS but nobody seems to want to order the testing for it.
Replies to "Thank you! She does have that low back pain. She already has so many congential anomalies..."
Hello! I am so sorry that you are going through such a rough time!
if you are looking for a pediatric MALS surgeon, there is an amazing amazing one at Cincinnati Children's Hospital, Dr. Nathan. (https://www.cincinnatichildrens.org/bio/n/jaimie-nathan). He has a very unique surgery method, and has a very high sucess rate. He is very deliberate and thorough, so rules out everything before surgery, to make sure that the surgery is necessary and will really help treat the symptoms. I can personally vouch for him, he saved my life.
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Have you been to a Vascular Surgeon? He’s the one who ordered my CT and Doppler Ultrasound of Abdomen and pelvic.