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Benefits of staying on hormone treatment past recommended 24 months

Prostate Cancer | Last Active: 3 days ago | Replies (21)
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@tom57

I haven’t heard of wave two for hot flashes, I’ll definitely look into it. Thanks for the information. For my fatigue I work out three times a week and also go ice skating which in combination really seems to help. I’m seeing an oncologist at Northwestern Medicine in Chicago which is considered a center of excellence. He is open to me staying on ADT longer, but I’m thinking I might also get another opinion, probably Mayo. Thanks for responding.

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jeff Marchi | @jeffmarc | May 31 8:45pm

Top GU Oncologist in Chicago
At U of Chicago Russell Szmulewitz, MD - UChicago Medicine
Or at Northwestern David J VanderWeele : Physician Profile: Robert H. Lurie Comprehensive Cancer Center of Northwestern University : Feinberg School of Medicine: Northwestern University

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jeff Marchi | @jeffmarc | Jun 1 2:49pm

I forgot to mention. During those eight years I was on ADT, if I reduced the drug I was using at all either ADT or Zytiga, Even a little bit, My PSA would go up very quickly. I’m pretty sure that is due to the BRCA2 since I am a Gleason 4+3.

2 years ago I tried going from 4 Zytiga to 3 Zytiga and my PSA rose from .2 to 1 in 18 days.

Get tested within 1 month of stopping ADT.

Discuss going on the PARP Inhibitor early with your doctor. There’s been a lot of buzz lately about it making a big difference long term. There’s even been a study using it early with Enzalutamide. I don’t know if it would be beneficial for you now, but The doctor you have probably has some good information about it.

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