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DiscussionDo you need to sanitize your toothbrush every day?
MAC & Bronchiectasis | Last Active: Jun 5 10:15am | Replies (77)Comment receiving replies
Replies to "I did try to post what happened and she deleted and then I deleted all my..."
I'm very sorry you got that sick and that she didn't use your experience as a learning experience and caution to others.
I'm not surprised she deleted it.
I still wonder what happened to other acutely ill woman with fevers she told not to take AB's. I posted a caution to call doc soon if no improvement, but knew if I were more direct she'd delete it as she had a couple others. I didn't see follow-up, but stopped reading soon after. I'm glad you recovered.
I just joined group about three months ago and I have not seen her tell people not to take antibiotics. She warns about getting sputum test to identify pathogen and to then do susceptibility testing before taking antibiotics. Is this not reasonable? She may have changed since you were there and I am so sorry people have gotten hurt by following something she said.
I am part of several groups and have gotten a lot of value from Lung Matters though I test all recommendations through my own experience of my disease profile and use only what actually works in my case. No one should follow anyone blindly. Lung Matters has done a lot of hard work to help others and that is commendable. Take what makes sense and test it against your own experience and what you see and hear on reputable forums like this, NTMir and Bronch350.
You are not the only person who has experienced this. That is the difference between a group that is "owned" by one individual and a group like Mayo Connect or Bronchiectasis 360 where discussion is welcomed and valued.