← Return to Neuroendocrine Carcinoma with Liver Metastasis

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Profile picture for vinnie694 @vinnie694

Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small bowel and metastasized to the liver, I’ve been on Ocreotide shots every 28 days and recently finished my last Lutathera (radiation treatment) and, there have been no new tumors over the 2 1/2 years and halfway through my radiation treatment, some that were growing are actually shrinking.. Physical I don’t feel any different than I did back when I was diagnosed.. Mentally I feel a lot better.. Seeing a neuroendocrine specialist is definitely recommended!,

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Replies to "Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small..."

My NET story is similar to yours--small intestines metastasized to liver. I get the same monthly shots as well, but haven't heard about Lutathera. Are you in the US? I work with an oncologist who specializes in NETs, but she's never mentioned it. I'll ask her about it after my upcoming scan. When you wrote that you don't feel any different physically from the time you were diagnosed, are you feeling good or fatigued or? I was diagnosed in fall 2024 and fatigue seems to be a big factor for me. Deep fatigue. Take care.