Rare Cancer: Gynecologic Extramammary Paget's Disease
Extra Mammary Paget’s Disease - invasive cancer.
No know treatment or clinical trials.
Very rare and rarely studied.
Anyone else have it?
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
@aprills, I can understand your frustration. It's important to have confidence in your team and the recommended treatment. Keep asking question to understand why and to feel comfortable with the plan. There are too many "what ifs" in life.
Is getting a second opinion an option for you?