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The Caregiver’s Brain

Caregivers: Dementia | Last Active: 1 day ago | Replies (44)

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My heart goes out to you all. Full disclosure-- 20+ years ago purchased long term care insurance. Had to use it on/of during three years when wife had major back surgery and contracted MRSA. Am using it now for a caregiver to come in at home. I realize that many/most ppl don't have it and life can be hell. My wife and I have had multiple discussions now (she is in early stage dementia and able to have an intelligent conversation) and in the past. I don't think either of us want to be a life sucking burden to the other. When it becomes obvious that she is not able to get what she needs at home, I'll find a good residential facility for her and keep up our relationship as best as I can. If I didn't have the insurance, I doubt that we would think any differently. I would obtain consultation from an experienced elder law attorney about how to divide our finances so that she would in essence be a "pauper" so that she would be eligible for medicaid. of that were to become necessary. I am not willing to totally drain our savings and have nothing to live on if I am not able to continue working.

We also have section in our advanced directives that allows us to go to a state that has a "death with dignity" law allowing for medical assisted self-live termination. I know many will disagree with our approach, but that's how we see things. This goes for both of us.

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Replies to "My heart goes out to you all. Full disclosure-- 20+ years ago purchased long term care..."

You are not alone, but our situation is reversed; it is my husband in the early stage of vascular dementia. He is also insulin dependent and has congestive heart disease. We have put him on the waiting list for respite (a year waiting list), and if necessary, for admission to a care facility. We also believe in death with dignity and have a no resuscitation agreement, a copy with the doc, on the fridge and at the hospital.