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Internal vibrations still affecting anyone?
Post-COVID Recovery & COVID-19 | Last Active: Aug 28 11:08am | Replies (19)Comment receiving replies
I was normal and healthy before I got the first Pfizer shot. 4 days after the shot I got a headache so bad I lost vision in my left eye for a few moments, got blurred vision then woke up the next day with dizziness and vertigo. I had to hang on to my husband to walk. I felt this electricity going through my body, down my arms and legs and my brain felt a fullness sensation. Movement made it worse then I became so fatigued I would crash for hours with an internal tremor, tinnitus and a body brain tremor. I also had difficulty speaking getting words out, like aphasia. I couldn’t read without crashing or work on a computer. I had trouble articulating what I was experiencing. I was experiencing heart palpitations/tachacardia and SOB. Also unexplained rashes on my face neck and chest and rash patches on my legs and arms. The week before the vaccine I was running with my husband 5-10 km every weekend and working out at Orange Theory. I was told the vaccine wasn’t responsible and I was told to keep getting it. After the second shot 24 hours later I was in an ambulance with severe sweating and heart cramping. Was given nitro and gradually the cramping subsided. No explanation when I asked if the vaccine could have caused this event I was ignored. Every specialist I saw did not have an explanation for my sudden onslaught of symptoms and not one specialist would go near my questions about the vaccine. I felt afraid to even mention the vaccine because of the frozen almost angry response I would get. Fast forward 4 years and I finally have been dx with MECFS; MCAS; POTS, Sjogren’s and Lupus SLE. I wake up from sleeping whether from a daytime crash(usually once a day or more) and morning to full body including arms and legs tremor. My arms and hands will be numb and tingly and often my hands and fingers are splayed out stiff as boards. It’s an awful way to wake up and it’s been everyday for four years. Since the first shot. I have PEM. I get anxious about planning g any social events and have learned to warn people that I may have to cancel last minute because I don’t know how sick I’ll be the day of. I get really stressed out inviting friends over for dinner or even just a coffee because I’ll feel terrible If I have to cancel. The worst part is not knowing how long I’m going to live. I was 50 years old when I got sick. I’m 54 now. I lost my career in healthcare. Which I’m upset about because I loved my career, did an undergraduate and graduate degree at McGill and also attended NYU and planned to finish another masters degree in bioethics. Now I can’t read or remember in a normal way. I lose my train of thought and have trouble concentrating. I become exhausted, then tremor then crash, then tremor coming out of my crash. Some days I cannot get out of bed and I’m so sleepy I feel drunk. I’ve also experience leg and arm weakness. Have fallen down for no reason. This symptom started a year ago along with peripheral neuropathy in hands and legs and toes. Came off amitriptyline and the symptoms got better. Now the falling is coming back. I have neck zaps and pain. Was dx with Lupus in January and the Rhumatologist believes the vaccine likely caused this. I am 100%certain the vaccine is responsible for my sudden illness 4 days after getting it. The worst part is not even the illness itself and the adjustment I’ve had to make in my life dealing with being sick everyday but the lack of support and interest in physicians I saw after the injury. Doctors dismissing me when cbc’s and other tests come back normal. The resistance to discussing possible vaccine harm. One doctor literally told me he couldn't document anything about the vaccine or he could be fired 🙄. No one should have been afraid for their job in order to connect the obvious dots. The ER attendings should have told me NOT to get more vaccines until they could be 100% be sure they didn’t harm me. I tried to get an exemption but was denied twice. Lastly, I’m getting an MRI of my brain and neck to see what could be causing my falling and periodic leg weakness. I’m hoping it’s not MS on top of the Lupus SLE. Does anyone know if the vaccine can cause autoimmune disease? Can anyone relate to my story and symptoms? I have applied for the Canadian Vaccine Injury program but my caseworker has not followed up with me for months now so I don’t think I’m going to get it.
Anyone else going through this has my empathy!!
Tracy
Replies to "I was normal and healthy before I got the first Pfizer shot. 4 days after the..."
3 parts – Yale Study; Covid and Our Arteries; and Bonus
Yale - School of Medicine – Immunology
Dr. Akiko Iwasaski
https://medicine.yale.edu/profile/akiko-iwasaki/
Note: Reading Dr. Iwasaski papers has given me Hope for long Covid and Post-Vaccination Syndrome.
Iwasaski Lab
https://medicine.yale.edu/lab/iwasaki/
Read More – Immunology of acute COVID and vaccine responses; Immunology of long COVID; Neuroimmunology; Viruses, autoimmunity and cancer; Mucosal Vaccines against Viruses; Preparing for future pandemic pathogens
8/14/2025 - Comparative Analysis of Long COVID and Post-Vaccination Syndrome: A Cross-Sectional Study of Clinical Symptoms and Machine Learning-Based Differentiation
https://www.medrxiv.org/content/10.1101/2025.08.14.25333639v1
ABSTRACT
Importance - Long COVID is a well-documented post-viral syndrome, while post-vaccination syndrome (PVS) remains poorly characterized. Understanding their similarities and differences is essential for refining diagnostic criteria and developing targeted interventions. This study systematically compares the symptomatology of long COVID and PVS following COVID-19 vaccination, highlighting key distinctions that could inform clinical practice and research.
Objective - To assess the clinical characteristics of long COVID and PVS and identify key distinguishing features between the conditions.
…
Question What are the similarities and differences between long COVID and post-vaccination syndrome (PVS)?
Findings- In this cross-sectional study of 682 individuals, machine learning models identified distinct symptoms between long COVID and PVS. Long COVID was characterized by brain fog, altered sense of smell, and shortness of breath, while PVS was associated with burning sensations, neuropathy, and numbness.
Meaning - Although long COVID and PVS share overlapping symptoms, they have distinctive symptom profiles, suggesting potentially different underlying biological mechanisms. Understanding these differences can guide clinical diagnosis and targeted management, and inform further research into their distinct immune and biological pathways. (See below The Yale LISTEN Study Town Hall: October 2023)
5/29/2025 - Yale COVID-19 Recovery Study
https://clinicaltrials.gov/study/NCT04895189
Brief Summary
The general purpose of the study is to determine the change in immune responses in people with Post-Acute Sequelae of SARS-CoV-2 Infection (PASC) after vaccination. PASC is a disabling, heterogeneous condition in which people have persistent or emerging symptoms months after an initial SARS-CoV-2 infection, (the virus that causes coronavirus disease 2019, or COVID-19. Specifically, the purpose is to enroll participants suffering from moderate-to-severe PASC prior to vaccination and to measure participants' immune and symptom profiles both before and after vaccination. This study is primarily descriptive.
Feb 19, 2025 - A small number of people report chronic symptoms after receiving COVID-19 shots. A new study provides clues for further research.
https://news.yale.edu/2025/02/19/immune-markers-post-vaccination-syndrome-indicate-future-research-directions
COVID-19 vaccines have been instrumental in reducing the impact of the pandemic, preventing severe illness and death, and they appear to protect against long COVID. However, some individuals have reported chronic symptoms that developed soon after receiving a COVID-19 vaccine. This little-understood, persistent condition, referred to as post-vaccination syndrome (PVS), remains unrecognized by medical authorities, and little is known about its biological underpinnings.
In a new study, Yale researchers have taken initial steps to characterize this condition, uncovering potential immunological patterns that differentiate those with PVS from others. The findings are early and require further confirmation but may eventually guide strategies to help affected individuals.
10/19/2023 Harlan Krumholz and Akiko Iwasaki (Rishi Shiah, Lilo Wu, and Adith Arun) discuss preliminary findings and answer questions from LISTEN participants.
https://medicine.yale.edu/ycci/listen-study/video/
The Yale LISTEN Study Town Hall: October 2023
The entire Town Hall is very interesting, here are 4 I found enlightening.
8:00 Difference in Percent of Participants Experiencing Symptom (Long Covid – PVS post-vaccination syndrome; Note: the chart in video is informative)
Long Covid -
Memory problems
Changed sense of smell
Brain fog
Shortness of breath
Cough
Sore throat
Excessive fatigue
Difficulty speaking properly
Changed sense of taste
Fatigue
Congested or runny nose
Phantom smells
Runny nose
Phlegm in back of throat
Headache
Constant thirst
Night sweats
Hypersomnia
Confusion
Insomnia
Hair loss
Dry scalp or dandruff
Dizziness
Throat pain or discomfort
Postnasal drip
Exercise Intolerance
Wheezing
Swollen hands or feet
Cold/burning lung sensation
Changes in voice
Phantom tastes
PVS -
Loss of hearing
Suicidal thoughts
Feelings of impending doom
Palpitations
Tinnitus
Numbness
Internal vibration
Neuropathy
Burning sensations
16:00 Implications
18:33 Hypothesis
37:00 Hope next 6 months
8/18/2025 - Covid and Our Arteries - by Eric Topol
https://erictopol.substack.com/p/covid-and-our-arteries
I’ll review the 3 dimensions for how our understanding Covid’s effect on arteries has evolved: (1) Endothelial Inflammation; (2) Promoting Atherosclerosis; and (3) Accelerating Aging
Bonus
If needed - Find Headache Specialist in your area:
https://headaches.org/resources/healthcare-provider-finder/
Certifications (providers) – UCNS (750) and AQH (300)
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It's a journey, best wishes on your journey!
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How horrible! I am so sorry for what you are going through. My symptoms didn’t start until long after my first vaccine and only after my first case of Covid. Some have speculate once I got the virus that something in the vaccine was triggered to set off my symptoms. I guess that’s a possibility but I feel my symptoms are probably due to the virus. But not sure we will ever know. I pray you get improvement!
Connect
First, understand that the vaccine and the virus unloads DNA, from plasmids and from the nuclear envelope, into your GI bacteria/yeast. The primary infection point is your GI tract. Second, the bacteria and yeast continue to propagate and manufacture things that are negatively affecting you. Mayo (et al), while very good at compartmentalized diagnosis’, won’t messily able to address the problems because they are systemic, and that’s not the way their system works (for the most part). You have a broad-spectrum illness called CIRS (no ICD-10 code), due to flora disturbance.
Make your own kefir from a good acidic strain, that you’ll only find as a wild-type. Make sure it’s fermented thoroughly enough so that you get the kefir “grains” and eat them too. They kill all the clostidria, e.coli, and bad yeasts. Warning: it is a powerful anti inflammatory, and when you actually get some relief….have a game plan on what you want to do the rest of your life. Also, do a “Spectra”. “Cell.” Test. CIRS doctors (YouTube):
Dr. Peter Osborne,
Dr. Judy Cho,
Dr. Neil Nathan, for starters. Don’t venture too far away from them, the internet is filled with junk.
Also suggested is a GI antifungal (nystatin). If your fungal/yeast problem is bad enough, then itraconazole (see Dr. Campbell). By the way, Mayo did do a long-forgotten study on fungal issues as the root cause of sinus issues….you might need an antifungal spray too.
Also, you might want to try EWOT. Watch the videos by Dr. Tom Incledon at Causenta. Also watch Dr. Angelique Hart (O2brain dot com). Don’t do EWOT before you do Spectra.Cell.