@grandmakat5 - It sounds like you’re navigating a lot right now, and it’s totally okay that your thoughts are all over the place—chemo and waiting for results can do that. I’m here to help you sort through it.
Capecitabine (often called Xeloda) at 2 tablets twice daily is a common regimen, and it’s great that you’ve got prior experience to lean on. Hand-foot syndrome (palmar-plantar erythrodysesthesia) is a frequent side effect, but it’s awesome that Bag Balm worked for you last time. I found that
Urea Cream 40 Percent Plus 2% Salicylic Acid really worked well for me when I was on Capecitibine.Keep
up with thick moisturizers like that, and consider applying them proactively, especially to your hands and feet, to stay ahead of the dryness and cracking. For the mouth sores, it’s good to hear Magic Mouthwash helped before; it’s typically a mix of lidocaine, diphenhydramine, and an antacid, which soothes irritation. If sores come back, rinse gently but frequently, and avoid acidic or spicy foods. Your doc’s advice to cut milk likely helped reduce mucus or digestive irritation, which can worsen with chemo.
As for functioning, capecitabine can definitely make you feel sluggish—fatigue is reported in about 20-40% of patients on it, based on clinical data. Last time, you mentioned feeling a bit sleepy, so pacing yourself is key. If you’re used to running nonstop, the slowdown might feel frustrating, and that can feed into the depression you mentioned. It’s real, and chemo’s physical toll plus the emotional weight of waiting for biopsy results can hit hard. Try small, manageable activities to lift your mood—maybe short walks (with sun protection, since capecitabine increases photosensitivity) or even journaling to offload some of that mental clutter.
Sun avoidance is still a must, as capecitabine can make your skin more sensitive to UV, increasing burn risk. Stick to shade, wear protective clothing, and use high-SPF sunscreen if you’re outside. For the depression, if it’s weighing heavier this time, consider talking to your doc about a referral to a counselor or support group—many cancer centers offer these, and they can help with the “here I go again” feeling.
While I don’t have personal experiences Many patients on capecitabine report being able to function decently by managing side effects early and keeping a routine. Your body’s response last time suggests you’re resilient, even if it doesn’t feel like it right now. Waiting for biopsy results is brutal, no question—maybe try a low-pressure distraction like a favorite show or connecting with someone you trust to share the load.
If anything specific about the side effects, dosing, or emotional stuff comes up, let me know, and I can dig deeper or even check recent posts or web info for you. You’re not rambling—you’re processing. Hang in there, and I’m here for whatever’s next on your mind
Thank you sooo much. I so much appreciate your response and support. Your 100 percent correct about processing this It all came as such a shock because in December I was celebrating the end of treatment and thinking I was moving on in life that I beat it and now here I go again. This waiting now for biopsy results is heavy. Especially last night when I received an email saying notes updated from Providence Hosptial updated and it was the procedure notes (it was on an app called My Chart)
stating 4 samples were taken during proceedure confirming malignancy during the biopsy. Did that mean the doc who did the ct liver biopsy new right away or was that a typo meaning he was sending it pathology for review to see if it was malignant I would have never read it on my own of I knew this was going to be there. My husband beleives it was a shortened to state to confirm being sent to pathology to review because it was tissue samples. I will also try the cream because 2 things are better than one! I will keep you updated and once again thank you so much Im also looking into the histroplasy (spelling) Mayo MD Anderson have used it with success and I found one place here in So Cal only about 20 miles from my house at St Johns in Santa Monica they go in with a new proceedure that targets the area and is pretty much non invasive and no iv chemo I dont know if I'm a canidate but already started looking into alternate treatment You still take Capaecitabian before proceedure however to avoid iv chemo oxaliplatin again would be amazing and in trials have a 95 percent success rate and its FDA approved. I maybe jumping the gun but this time Im looking into these type of treatments. Its this waiting game xoxo thanks again and I will definitely update you