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Hesitant to begin drug treatment for my osteoporosis
Osteoporosis & Bone Health | Last Active: Jun 4 9:03am | Replies (127)Comment receiving replies
Hi!
I avoided taking Evenity. I was concerned about side effects. Although I had been taking the generic of Fosamax for many years, I suffered a bone fracture in my back. When that happened, my orthopedist (spine specialist), said that something other than Fosamax, was needed. My rheumatologist, who had encouraged me to begin Evenity over a year prior to the break, started me on my year’s association with Evenity. Fast forward: 13 months later-My bone density scan showed a 17% increase in bone in my spine. My hip returned to osteopenia from osteoporosis. My rheumatologist was almost giddy with the results. He said he has rarely seen more than 10-12% increase in bone density. If you decide to begin Evenity, I highly recommend you get the 2 monthly shots in your stomach. At first, I couldn’t imagine shots in my stomach. But, having an ample stomach, and having the area “frozen” before the nurse administered the shots, made it much less painful than having the shots in the back of my upper arms.
Now, I am debating between Reclast and Prolia. My rheumatologist first recommended Reclast, but after seeing the results of the bone density, he said either one would be fine. I am leaning towards Reclast. Wishing you the best of luck with whatever decision you make.
Replies to "Hi! I avoided taking Evenity. I was concerned about side effects. Although I had been taking..."
I had been on reclast for 4vyrs. No problems but fx my back and ostepenis turned into osteporois. Developed Parathyroidism so my only choice was Evenity. I wish my trip with Evenity was as good as yours. Started 3/24 to 2/25. My s/e started at dose 6 months and increased in severity each month. S/e of stress fx of femur, severe increase of arthritis and bone pain that has not resolved after trial ended (3 mo). Got 2 shots in stomach 12 months and ended 2/11/25. Several S/E such as excerbation of hip and groin pain and arthritis pain as I now walk with walker. Before I could do anything I always did. Gardening, climbing walking yoga etc. Othe S/E of Skin Itching has subsided. I have taken one hold shot oF Reclast but am considering not taking it again next March. Unable to get delayed scan till Dec. My orthopedic has helped me with my hip and femur pain so I will stick with her. (ON WHEN I FELL IN 2022 AND FX MY BACK I APPARENTLY TORN MY ROTATOR CUFF.)
Had surgery repair after Evenity finished 2025. I am considering changing Rheumatologist though.. it's been a nightmare.
I just want my life back.
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Good news! Can I ask, do you bring ice to the infusion center or do the nurses do that? I’ve had four months of shots and always get huge lumps at the inner side so f my upper arm. The nurses are wonderful and have suggested my stomach but haven’t mentioned ice. Thank you!