Connect
← Return to Median Arcuate Ligament Syndrome (MALS)
Discussion
Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 1 hour ago | Replies (1229)Comment receiving replies
Today I have been thinking about support from friends and family? Outside this group, do you feel you have the support you need? Many of us still struggle years after surgery with symptoms, I know I have. I am so grateful for the surgery, and do not regret it at all, however I find I have not received the aftercare I needed from my healthcare system. I believe so much more can be done. Would love to hear from others when you have a moment.
Replies to "Today I have been thinking about support from friends and family? Outside this group, do you..."
Connect
Hi Kari,
What symptoms do you still have to deal with? I’m confused about what my body is reacting to. The surgery eliminated the horrible pain after meals, but for years I also have pain in that area after my gallbladder was removed. At the same time I had the excruciating attacks of pain that I now realize must have been related to MALS. On top of that I developed autoimmune illness of my entire GI tract, now healed.
I think it would have been helpful to have nutritional/ dietary advice. There were so many foods I avoided and couldn’t eat. I’m actually surprised not one physician ever brought it up. In addition- living with a chronic illness when you appear well is very frustrating.