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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Jun 26 2:45pm | Replies (1189)

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@kariulrich

@jmmb how are you doing? I have been thinking of you.

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Replies to "@jmmb how are you doing? I have been thinking of you."

This is so freaky!!! This morning I was thinking of you, I swear!! I have been so wrapped up with my health in other areas, the MALS has been on the back burner, But this morning I don't know why, I was like, oh I should send Kari a message to see how she is doing...I've been so busy all day and when I saw the email this morning I was like no way!! This is the first chance I had to sit down.
Well I dont' even remember what you know. I have continued to be sick, more than stomach issues. So when you recommended mals pals people there suggested my symptoms to be POTS and dysautonomia and they were right. So thank you because I would never have known these things!! I am on 2 liters of IV hydration daily. I am still dehydrated and they don't know why. Kidney dr. is sending me to mayo to see her mentor because she just can't figure it out. I am peeing out my sodium, but my blood sodium is ok, and I am peeing way to much but mostly at night. I can't get in until Oct. 22. Trying some meds for the pots/dysautonomia. Iron was low now that is ok. Had mri of head and back and my neck is really messed up, so in PT.
My daughter was suppose to get married in June in Jamaica, but she cancelled because of my health. They are getting married Oct. 4 on the beach in San Diego. This way I can drive and take all my hydration.....
How are you doing???