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Bladder Cancer Group: Introduce yourself and connect with others
Bladder Cancer | Last Active: Sep 16 11:03am | Replies (357)Comment receiving replies
Hello I have just been diagnosed with non invasive aggressive bladder cancer.
It was found by CT scan for stomach issues. They called me and said I had a spot in my bladder and needed to get that taken care of first. So I went to the urologist and he removed 2 tumors (confirmed) and and I am now scheduled to start BCG in a couple of weeks. My concern with this treatment is that I am on an immunosuppressant for a liver transplant and wondering about the side effects of this live virus they have been telling me for 10 years to avoid taking. My transplant doctor has said it should be ok but I need blood test every couple weeks to make sure I’m okay.
That adds to the stress of the diagnosis and treatment.
I was wondering if anyone is or has dealt with this circumstance.
Thank you,
Mike
Replies to "Hello I have just been diagnosed with non invasive aggressive bladder cancer. It was found by..."
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Wow Mike, that is a lot to deal with. I would think that your transplant doctor would be the one to ask, but would want to know just what are the risks? Is BCG the best way to go? Perhaps Instiladren or Gemcitabine should be discussed? The more opinions, the merrier in my mind, so is there another medical team member who can weigh in on this for you? I wish I could give you a positive experience but cannot. In dealing with my husband's muscle invasive bladder cancer treatments for 5 years we have learned to ask all the questions about side effects, complications, and frequency of these issues. Can you request a referral to a large teaching or cancer center where multiple opinions could be received?